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Old 09-29-2014, 05:45 AM #1
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Default Guillain-Barre Syndrome AMAN

Hello,

Does anyone know the time-frame for standing / walking after Guillain-Barre Syndrome-AMAN (Acute Motor Axonal Neuropathy)? I was diagnosed with this in May, 2014 and still I cannot stand independently, let alone walk. My therapist says I will walk but doesn't say how long it will take. Does anyone have any personal experience with this? Thank you for your feedback.
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Old 09-29-2014, 07:43 AM #2
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My understanding is that it is highly individual. It depends on
how quickly you were treated, and if treated at all with IVIG?

Some people heal quickly and others not so quickly.

If you do not eat a diet that contains the nutrients for nerve cell repair, that repair will not take place well or properly.

Myelin is repaired with Omega-3 fatty acids, B12, folate and B6.
Any upset with these nutrients may result in poor healing.

A friend of mine had GBS several years ago, and was given plasmapharesis. During her rehab there were patients who were not recovering. It took her several months to walk well again, and a full year to get some stamina back. She was paralyzed from the neck down, but could still breathe on her own.
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Old 09-29-2014, 09:04 AM #3
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Welcome Osat.

It is highly individual. One friend of ours came out of it fine. Another friend never got back what he had. He does well but not the same. He could only move his eyes at the lowest of it all.

Time will tell as to how it goes.
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Old 09-29-2014, 10:07 AM #4
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As others have said, it's different for everyone. But success is greater if treatment is started right away.

Are you receiving IVIG? Have you at least noticed any improvement follow the IVIG?
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Old 09-29-2014, 11:34 AM #5
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Default Guillain-Barre Syndrome AMAN

Hello Again, and thanks to all for your comments.

I was hospitalized for 2 months and received intravenous IVIG treatments along with lots and lots of tests. I have had physiotherapy daily from the onset of the disease. AMAN is the more severe form of GBS. While I have researched and read about recovery time ranges for regular GBS,--ADIP (Acute Inflammatory Demyelinating Polyneuropathy)--I haven't been able to find any time frames dealing with the ability to walk after a bout with AMAN (Acute Motor Axonal Neuropathy). I am looking for any personal experiences (or information) concerning how long it took to actually take a few steps--Weeks? Months? Years? Many thanks.
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Old 09-29-2014, 11:43 AM #6
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Doing a search here may bring up some older posts.

You need at least 4 characters for the search to work.
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