[baba222]

Up until last year.. charmed life..extremely healthier than husband.
Always inquiring about other's health. Loads of family and friends who love me.
Now that I am not improving and having crazy symptoms, I do not love my religion enough and this all my be due to anxiety.
I am trying to realize that they don't understand, but these comments from people that I love and have known most of my life.
How much do you tell and what works for you?
TIA

[zkrp01]

Hi Baba, It happens every day, even to God fearing, trying to do the right thing,in the church when the doors are open,people. You can tell all here. We are people too but I have not read any judgemental threads. It is rare for people to listen and really try to put themselves into your shoes. I hope that you can find someone to sit across the coffee table and listen. In that same breath, I have to temper my speech w/others and not be dominating. If I get on my soapbox I'm sure it gets boring for my audience. Myself, I am always interested in trying to match up symptoms. You may have told what you are dealing with in past threads but give an update. Good Luck, Ken in Texas.
P>S, I found your question about the Mayo visit that is upcoming. I agree with Jo-Mar that all needs to be known by your Dr.s. They may be able to connect some of the dots.

[Sallysblooms]

You can just help them understand. I tell them what it is like and tell them what is wrong. I try to have an explanation for everyone that is quick and easy to understand.

[mrsD]

You know what I've been reminded of today?

If you have NOT had the MTHFR testing, for DNA mutations, I'd ask Mayo to provide this testing for you.

It would be interesting to note if they refuse! And very disappointing.

[baba222]

Originally Posted by mrsD

You know what I've been reminded of today?

If you have NOT had the MTHFR testing, for DNA mutations, I'd ask Mayo to provide this testing for you.

It would be interesting to note if they refuse! And very disappointing.

Could you explain more why I need that?
No, I have not been tested.
TIA.

[mrsD]

People who cannot methylate their nutrients derived from food, will suffer deficiency even when tested (showing "normal").... since the inactive forms show up in testing, floating around doing nothing for you.

The folic acid in vitamins and our fortified foods, is not active in the body. If you have the mutation, you will not get much benefit from it.

One of the treatments for PN is Metanx... a medical food with 3 activated forms of B12, folic acid and B6.

[baba222]

Originally Posted by mrsD

People who cannot methylate their nutrients derived from food, will suffer deficiency even when tested (showing "normal").... since the inactive forms show up in testing, floating around doing nothing for you.

The folic acid in vitamins and our fortified foods, is not active in the body. If you have the mutation, you will not get much benefit from it.

One of the treatments for PN is Metanx... a medical food with 3 activated forms of B12, folic acid and B6.

So, if I get a prescription for Mentax, it will work for me then?

I am sorry-confused.

[jenng]

Hi Baba,

In my experience, I know that I can't talk about my health with some people. This includes my best friend! We have a great relationship, but if I start talking about my issues her eyes glaze over and I become resentful because I think she should listen. I just decided she was valuable enough to me in other ways to let it go. As much as we may love them, some people don't have empathy naturally, and unless they have medical issues similar to ours, sympathy isn't there, either. I've been living with strange symptoms for about 13 years. Lots of time spent seeking answers, but still no concrete cause of my symptoms. My husband has been there for it all, but even he says, "just live your life and try not to focus on it so much." Right. That's gonna happen.