This is my first time posting in the forums. I have been struggling with neuropathy since 2009. I firmly believe that my neuropathy is linked to the H1N1 vaccine that I received that year. It began with one foot falling asleep, waking up, then back to sleep, permanently asleep, both asleep, numb on bottoms, then tingling and burning on the tops. Five years later I suppose i'm lucky (I guess that is relative) that it is only now beginning to creep up beyond the ankles. I function fairly well most of the time, and probably have less pain that most judging by reading the other posts on the forums. But I won't lie...those posts scare me.

In the past few weeks my neuropathy has spread again above the ankles a bit. I have done everything in my power to prevent this from happening. After meeting with two different neurologists in 2010 I knew that all they could provide for me was prescription drugs and no real answers. I was told I have had pretty much every test done (which I now believe is not true), and that no cause could be determined. No one has ever seemed interested in really digging into the cause, nor believing that the H1N1 vaccine has caused me and my family so much anguish. In the past five years I have spent untold hours online educating myself about this disease. A list of some of the things I have done which have helped:

1 . I reached my ideal weight (lost 70lbs)
2. Went on a STRICT diet in which:
- I eat 90 percent organic
- I avoid GMO foods
- I avoid processed sugars, sodas, etc
- I purchased a juicer and make fresh vegetable juices daily
- I consume one "Amazing Grass ORAC powder" drink daily
- My diet consists of only 5 percent meat
- My diet consists of 90 percent foods in their natural state (non-processed)
3. A supplement regimen consisting of:
- Acetyl L carnitine 2000 mg twice daily
- Agmatine (dose varies - there are currently clinical studies underway which initially suggest that agmatine may help with neuropathic pain).
- St Johns Wort 600 mg twice daily
- Sam-E 200 mg daily
- Alpha Lipoic Acid 600 mg twice daily
- N Acetyl Cystine 600 mg at bedtime
- Turmeric Curcumin (tons and tons of this!)
- Cayenne capusles multiple times per day
- Skullcap capsules multiple times per day
- Methylcobalamin 5000 mcg daily
- Vitamin D 5000 once daily
- Cats Claw 1000 mg daily
- Natural Care Nerve Fix (I love this product, it helps a lot) 2 pills twice daily
4. Gabapentin 3200 mg daily
5. Capsaicin Cream and Lidocaine Patches as needed
6. Herbal teas as needed consisting of corydalis yanhusuo (this was on Dr. Oz), valerian root, passionflower, blue vervain, california poppy, etc

At any rate, while I believe that all of these things have collectively benefited me greatly, I am still losing this battle. I know that so many are, I just really felt like I had a handle on this. The fight has been exhausting. Now that it is spreading I find myself wondering what more can I do. I am considering going to another neurologist and exploring the possibility of this being autoimmune in nature (which is possible if it is indeed vaccine induced). I can't just sit by while this disease slowly consumes me.

Well, thanks for listening. I'm really just here for support I guess. And if anyone has any suggestions, of course i'd love to hear those as well. I just can't do this alone anymore. I have driven my poor wife crazy! Thanks.