Did the IVIG infusions help at all? Seems like they would have if the neuropathy was autoimmune. I hope you can find some answers.

Lots of people claim those coffee enemas help with their autoimmune diseases. We'll see

Exercise and stretching is imperative and swimming is also great for NP.

Glad you are doing well. Congrats!

Well, I said I'd try anything so if you do have this experience, let me know. You first!

Dear sir,
I'm sorry you find yourself in this situation. It's not fun. Why do you think the H1N1 vaccine caused your PN? Do you know of other cases where this happened? Remember that because two things happen at about the same time does not mean that one caused the other.

I am concerned with you linking your identity with the H1N1 vaccine so strongly that you made it your username. I think you need to let that go, at least for yourself. If you want to be an activist against H1N1 vaccine, I could see that, but I don't see that it matters whether it caused your PN. Possibly unless there is still a substance from that vaccine lingering in your body. A person can get so obsessed with a notion that it blocks progress.

You need to find a competent clinic that is versed in the couple hundred causes of PN, such as Mayo, Cleveland Clinic, John Hayes at NeuropathyDr, & there are others. Have them do their best to find a cause. A general neurologist does not know how to do this. Then you can know you did what you could in this respect.

I like your diet, except I believe you should eliminate animal products all together. Many studies show that they increase risk of chronic disease. You said "My diet consists of 90 percent foods in their natural state," for which I commend you very much, probably better than what I do. What is the other 10%? For example if it were Lucky Charms & corn oil then I am concerned. I have been making a concerted effort to eat a good diet for several years now and I believe it has slowed greatly the progress of the PN. So keep it up. Many books explaining the benefits.

Many of your supplements look great. Remember that not all brands are the same. Sometimes it's not best to get the cheapest. I have found that alpha-lipoic acid and evening primrose oil reduce my pain levels. Possibly the methylcobalamin as well.

Exercise is very important, so don't forget that.
Ron

The neuropathy began within a month of receiving the H1N1 vaccine. It was not immediate and it was only years later that I put these two things together, but the internet is full of tales that are similar to that of my own.

I am having tremendous difficulty letting go and forgiving myself.

I had been going to Vanderbilt University for several years before last year I gave up as nothing was going on except a physical exam and medication renewals. I am getting ready to see another neurologist who has a good reputation in the community. I will hope for the best. I just can't afford to travel out of state to somewhere like Cleveland Clinic.

When I say 90% in relation to food, the other 10% consists primarily of things like crackers and pastas, all of which are organic. I am obsessed with organic and Non-GMO.

If you have any other supplement recommendations of things you are taking I would love to hear them. Perhaps you could recommend some superior vendors. I generally use vitacost and bulksupplements.com.

Guy, If in fact the vaccine caused your PN, you should have no resentment toward yourself, only toward the medical system in the U.S., which is not doing a very good job. I'm sure you thought you were doing the right thing. Just don't get into such a mindset that you ignore other possible causes. Did you say you had your blood sugar tested, and B-12?

Organic and non-GMO is a great idea, but be careful of carbohydrates from processed foods. Not good for you. I have a hard time with this as well. I love sweets, especially dark chocolate and Boston Baked Beans (candy coated peanuts).

You may want to get tested for the toxins found in the H1N1 vaccine to see of they are still in your body. If this is not practical, look into detoxification (detox) techniques, which are widely discussed in health circles. There are coffee enemas, sauna, chelation therapies, Gerson, etc. The most important detox IMHO is a whole food plant based diet. The body already knows how to eliminate toxins, if we give it what it needs and withhold what sabotages the works, such as sugar, animal protein, and processed oils.

I use Jarrow Alpha-Lipoic Sustain (600 mg per day) and TwinLab evening primrose oil (2600 mg per day). I trust these two brands. If you search this forum, there are other brands that others trust. IMHO you don't usually want the cheapest.

See beatingneuropathy.com podcasts. Maybe you are near one of Dr. John Hayes' clinics. He is based in Massachusetts but has several other clinics in the U.S.
Ron

I have had all the tests for glucose intolerance and b-12 levels were good. I'm taking 5000 mcg of methylcobalamin now so this should be no issue at the present. The coffee enemas are something that I plan to start in the next week or so. The premise is sound. The reason I currently juice so much is because of the information contained in the Gerson Therapy. I wish I had both the time and the monetary resources to go full Gerson.

I understand the time, but what is expensive about it? I don't know a great deal about it, but I assume you need to buy a huge amount of organic vegetables for the juice. I would think eating raw whole foods instead of so much juicing would have quite a benefit as well.
Ron

That is the cost....the tremendous amount of organic veggies. I do drink a lot of juice and eat a ton of raw organic veggies.