advertisement
Reply
 
Thread Tools Display Modes
Old 10-15-2014, 11:14 PM #1
H1N1Guy H1N1Guy is offline
Junior Member
 
Join Date: Oct 2014
Location: Tennessee
Posts: 41
8 yr Member
H1N1Guy H1N1Guy is offline
Junior Member
 
Join Date: Oct 2014
Location: Tennessee
Posts: 41
8 yr Member
Default

Quote:
Originally Posted by beatle View Post
Early on in my disease I was eager to pinpoint the cause and was told by more than one neuro that it didn't matter since there is no cure. They said we have done the testing to rule out everything and yours is idiopathic. They dismissed my alcohol use (which I learned was not excessive), my vegan lifestyle and vaccines. By the way, I also had a pneumonia and tetanus vaccine simultaneously prior to the time that I acquired the PN. No matter what I said or how much I speculated, it was met with the same reply: that we will never know and it doesn't matter because there is no cure.
I guess for me I just want some proof that it was the vaccine. I mean, I know it was but I need to see it on paper as a vindication I suppose. If I can demonstrate it I is autoimmune then there will be a few more treatment options at least.

I am seriously considering doing the Gerson Therapy as there has been some success with MS which is an autoimmune disease as well.

Grasping at straws I guess but what else am I to do?
H1N1Guy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
beatle (10-15-2014)
Old 10-16-2014, 12:09 AM #2
beatle's Avatar
beatle beatle is offline
Member
 
Join Date: Nov 2013
Posts: 424
10 yr Member
beatle beatle is offline
Member
beatle's Avatar
 
Join Date: Nov 2013
Posts: 424
10 yr Member
Default

Quote:
Originally Posted by H1N1Guy View Post
I guess for me I just want some proof that it was the vaccine. I mean, I know it was but I need to see it on paper as a vindication I suppose. If I can demonstrate it I is autoimmune then there will be a few more treatment options at least.

I am seriously considering doing the Gerson Therapy as there has been some success with MS which is an autoimmune disease as well.

Grasping at straws I guess but what else am I to do?
Hey, I get it. I totally understand where you are coming from. Gerson Therapy is super healthy, not sure about those coffee enemas though

I too hoped that something would point to something with one of the tests...and I did them all. At this point, I just wish science could move much faster.
beatle is offline   Reply With QuoteReply With Quote
Old 10-16-2014, 12:18 AM #3
H1N1Guy H1N1Guy is offline
Junior Member
 
Join Date: Oct 2014
Location: Tennessee
Posts: 41
8 yr Member
H1N1Guy H1N1Guy is offline
Junior Member
 
Join Date: Oct 2014
Location: Tennessee
Posts: 41
8 yr Member
Default

Quote:
Originally Posted by beatle View Post
Hey, I get it. I totally understand where you are coming from. Gerson Therapy is super healthy, not sure about those coffee enemas though

I too hoped that something would point to something with one of the tests...and I did them all. At this point, I just wish science could move much faster.
Lots of people claim those coffee enemas help with their autoimmune diseases. We'll see
H1N1Guy is offline   Reply With QuoteReply With Quote
Old 10-16-2014, 12:31 AM #4
beatle's Avatar
beatle beatle is offline
Member
 
Join Date: Nov 2013
Posts: 424
10 yr Member
beatle beatle is offline
Member
beatle's Avatar
 
Join Date: Nov 2013
Posts: 424
10 yr Member
Default

Quote:
Originally Posted by H1N1Guy View Post
Lots of people claim those coffee enemas help with their autoimmune diseases. We'll see
Well, I said I'd try anything so if you do have this experience, let me know. You first!
beatle is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Idiopathic small fiber neuropathy SFNgirl Peripheral Neuropathy 46 05-01-2019 07:43 AM
idiopathic small fiber peripheral neuropathy cbar New Member Introductions 12 01-06-2013 05:57 PM
I have been Dx with idiopathic small sensory nerve fiber neuropathy and nothing helps Hurtin' Nerves Peripheral Neuropathy 15 04-02-2010 07:03 PM
Small Fiber (Diabetic) Peripheral Neuropathy? tjsmith890 General Health Conditions & Rare Disorders 2 04-22-2008 05:27 PM


All times are GMT -5. The time now is 05:37 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.