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-   -   Accessory Nerve trapezius palsy (https://www.neurotalk.org/peripheral-neuropathy/211585-accessory-nerve-trapezius-palsy.html)

firefighterstike 08-06-2015 01:30 PM

Quote:

Originally Posted by Cattle Dog (Post 1156888)
Stike,

I am very sorry to hear about all that you have been going through. If you do plan to move forward with the Eden Lange Procedure, I would highly recommend Dr. Anthony Romeo in Chicago. He is one of the top shoulder surgeons in the Country.

I plan to undergo the surgery with Dr. Romeo once my health insurance approves the procedure. Apparently, they want you to treat conservatively for a year first. September will be one year since I had cervical spine surgery that permanently damaged my spinal accessory nerve.

I would be glad to provide more information if you are interested - I live in Pittsburgh, PA.


Cattle dog, Thanks for responding. Yes i am interested in how your shoulder looks and act. Do you have droop in your shoulder? Does it cause neck pain from stretching the nerves out because of the hang. My first surgeon told me that the eden lange would not work because i dont have severe winging. I am going to be see Dr Richard Hawkins, sometime soon. The one who has the youtube video. Also i think i saw on here that someone said that there is a permanent weight restriction. Have you heard that from your doctor and if so what is it. Thanks for the help

Cattle Dog 08-27-2015 06:50 PM

Quote:

Originally Posted by firefighterstike (Post 1160601)
Cattle dog, Thanks for responding. Yes i am interested in how your shoulder looks and act. Do you have droop in your shoulder? Does it cause neck pain from stretching the nerves out because of the hang. My first surgeon told me that the eden lange would not work because i dont have severe winging. I am going to be see Dr Richard Hawkins, sometime soon. The one who has the youtube video. Also i think i saw on here that someone said that there is a permanent weight restriction. Have you heard that from your doctor and if so what is it. Thanks for the help

Yes, my shoulder does droop due to the trapezius palsy. I have some muscle atrophy underneath my arm. I have pain that runs along my neck and shoulder area when I use my arm. Scapula winging was not discussed during my consultation. Measurements were taken as to how far I can stretch & lift my arm. Following the surgery, I do believe there will be permanent weight limitations with this arm. Good luck with your appointment with Dr. Richard Hawkins - I'll be interested to hear how it goes.

Akash 08-12-2016 10:36 PM

Quote:

Originally Posted by Cattle Dog (Post 1141046)
Yes, I did PT for 3 months and the therapist indicated there was no rehabilitating this injury. Conservative treatment will consist of painkillers. The surgeon is very supportive and doesn't understand why the insurance is making me wait 4 months, when they ultimately will approve. It is extremely frustrating when I am on COBRA paying for coverage.

I asked about the nerve graft and they indicated they don't have a very high success rate. I also have had back and forth with the Neurosurgeon and Orthopedist, I relate to your frustration.

I'll let you know what goes on with the appeal and let me know how things go with the Orthopedist.

There has to be better days ahead!

Hi, what PT did you do? Perhaps this may help..
https://thesportsphysio.wordpress.co...misunderstood/

Erinannie 09-17-2017 08:21 PM

Just wanting to see if anyone has had the EL procedure. I have an SAN injury from a lymph node biopsy.

plower 03-28-2022 07:51 AM

so I know this is old post but did anyone actually have this done please share


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