[baba222]

Okay, been on boards for a little while...
Symptoms of "nerve issues" began at night approx. 3 weeks after an abdominal surgery (mass found), after long bout/investigations with other undiagnosed pain (band of pain around truncal area) after other abdominal surgery 9 months earlier.

Nerve issues with slight numbness at tingling of hands/feet only at night
Then three weeks later... electric from knees down/elbows down, always some tingling.
Next several weeks arms, legs, back, face, scalp, charges, vibrations etc.
Then burning that is when I sit, lie or touch certain parts.

From neurotion to lyrica. Now with lyrica 150mg at morning and at night. and cymbalta 20mg at night. Tried the mortons and epsoms baths with all directions noted. Take daily 200 of R lipoic, multivitamin, NAC 1200, 1000 B12, Benfotiamine 300mg, Nordic Naturals Cod Liver Oil. Strict gluten free.

All NCV and EMGs negative. Physical exam normal-no problems with muscles, reflexes, no autonomic involvement. All blood work normal. Many repeated, but all done. Cysts on spine but not related according to THREE doctors. MRI of brain negative for any lesions.

No improvement with symptoms, so now pain clinic and psychiatry mentioned often directly and indirectly. Been to TWO famous places with mixed results and 180' suggestions. Trying to be strong.

Sound like auto-immune or toxicity?

Come one, come all to provide any suggestions. Not asking for diagnosis, just suggestions from your experience here and/or life.

[hopeful]

It's really hard to say. See if you can check you prior medical records. Check to see if you were on any medicines before you developed neuropathy.

I know the FDA put a warning on fluoroquinolones. Avelox, cipro, levaquin. I believe that is what caused my neuropathy.

Others here will be able to tell you more toxins that cause neuropathy. It's late here and my brain is too tired to think!!

[mrsD]

I think one thing that people underestimate is that doctors induce damage every time you have an invasive procedure or take an RX drug.

In your case, baba, I see:
1) use of a fluoroquinolone drug implicated in PN

2) MRI for spine, and other things (more than one?) before the surgery? The spinal one was with contrast? Any MRIs with contrast may cause side effects. (doctors minimize this, but it happens).

3) Endoscopes? before your surgery (surgeries)? Endoscopes have been shown to be poorly cleaned and suspected of transmitting disease organisms in up to 30% of patients.
You can search Google for this data as it is mounting.

4) add to this any vaccines you may be getting on top of all the diagnostic work, that is a known nerve stressor.

5) then there are lifestyle stressors, which when changed are slow to help, so patience is needed for that. (going gluten free and/or eliminating other foods that cause intolerance like nightshades), and reducing/eliminating sugars and junk carbs.

6) fixing any nutrient deficiencies

7) avoid heating pads and hot tubs

And I am sure there are lots of other things like toxins, and autoimmune issues which develop in people over time. We cannot control the genetics of autoimmune liability, and only hope to avoid triggers, like vaccines and illnesses for that.

8) developing bone marrow disorders leads to PN, as well as cancer.