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Old 11-11-2014, 01:11 PM #11
sara1011 sara1011 is offline
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Good to know about the removal of the supplements prior to testing. Should have thought of that!!

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Originally Posted by mrsD View Post
There is really no correlation between "high" blood levels of B6 in testing IMO. The ranges were deliberately taken originally from people NOT USING any supplements.

We have no, therefore, frame of reference for what transpires in people scoring slightly out of range with B6 testing.

One would expect a high reading if you are taking vitamins.

For B12 testing one should stop them about a week (at least 3 days to a week) before the expected test. Acid reducing drugs affect and lower B12, folate, calcium, magnesium, zinc and iron absorption.
All critical for pregnancy.
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Old 11-14-2014, 01:43 PM #12
sara1011 sara1011 is offline
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If I was/am in fact B12 deficient, can you tell me your thoughts on this supplement: Garden of Life Vitamin Code Raw B-12

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Originally Posted by mrsD View Post
Well, I think your "pressure palsies" suggest low methylation.

You can just ask for the test. Or get it yourself from 23andme.
It is not that expensive. But it is very costly to you and your future baby if you cannot provide the nutrients in their proper form for the baby's nervous system, and also perhaps make your own neurological symptoms worse as the baby drains off the EFAs from you. MethylB12 and methylfolate are important for forming the myelin sheath of the nerves. (along with the EFAs.)
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Old 11-14-2014, 02:12 PM #13
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I am not impressed. This product does NOT disclose exactly what B12 is included. Is it cyano or methyl? For this reason alone, you should avoid it IMO.

It is also expensive for what you get. 30/11 dollars.

What is "raw B12" ? B12 is not found in plants or fruit.
This is a highly misleading product designed to pull in people who are vegan.

It is only from animal sources.

This is a sampling of methyl B12 from various companies sold on Amazon.
http://www.amazon.com/s/ref=nb_sb_ss...in%2Chpc%2C110

We buy ours at Costco directly and it is works out to 6.7 cents a tablet (at a cost of 20.00-- it is less $$ for members at Costco and they run sales there too.) In the past I used Jarrow's first as it was one of the only on the market, then I moved to Puritan's pride, but then Costco came out with it so much more affordably. So that is what my husband and I take now.

You need to choose a stand ALONE B12... nothing else mixed in with it. It should be taken on an empty stomach, with a little water. Other foods/fibers present may block its absorption in the small intestine. This is how it needs to be taken for best results. This should not be a pricey or expensive thing to do.

If you do know you do not have the MTHFR mutation for sure you could use this product. But I cannot guarantee good absorption for you with it, so you will have to get tested to see if it is working. The best test "for working" is the MMA.

Other non activated B12's will float around in the blood and show up in tests perhaps, so they are less clear in MTHFR patients so the MMA test would be better.

A good methyl B12 is therefore pennies a day. There is nothing else like this to supplement for the health of your nervous system and body, for such little investment, over the counter!
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Last edited by mrsD; 11-14-2014 at 04:45 PM. Reason: fixing grammar error
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Old 11-14-2014, 04:43 PM #14
jenng jenng is offline
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Question ? for MrsD....& advice for Sara

I take my methyl B12 & methylfolate with my synthroid first thing in the a.m. on an empty stomach. I couldn't find anything to suggest not to take them together, but wanted to check with you.

To the OP Sara, a genetic testing company called 23&me (and there are others) will provide your DNA information in raw form. It recently was just $99 for a swab kit and analysis. You can use this for ancestry information, & you can plug your raw data into sites like Genetic Genie to see if you have any gene mutations involving the methylation pathways. This can be very important information for us idiopathic PN'ers. I had abnormally low B12 a few years back (in the low 200's, which was odd, since I was not vegetarian. ) I supplemented with the cyano-form before I knew about methylation mutations, and only got it to 600. My genetic testing showed several heterozygous mutations in various pathways. I will re-test next month to see what 2 months of bioavailabile B12 & folate will show.

I have 2 girls and my neuropathy was identified in its earliest stages by emg the year after my youngest was born. (at 33.) Of course back then I knew none of this! I had no known family history of neuropathy! Now am 45 and the progression has been steady. If you can, I would get the genetic testing and build your body stores up. Proper preparation should be easier than trying to reclaim what is lost.
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Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.
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