[sara1011]

Hello. I've been dealing with neuropathy for the past 9 months. I'm only 30 and hoping to expand my family. My NCS revealed a slow nerve response which confirmed neuropathy, potentially demylenating. After many blood tests that all came back within normal range, they are calling it idiopathic. Very frustrating!! I'm very healthy otherwise with no history of health problems.

My symptoms are consistent but not too painful but being so young I worry about the progression. My doctors have said they don't foresee any issues in getting pregnant but I am wondering if anyone has personal stories to support that.

Thanks in advance!!

[Marlene]

There are normal ranges and then ranges that are right for you when you felt better. An example would be B12 levels. Having a low normal B12 is a red flag to us here. And at 30, yours should be above 500. You may want to post what tests and results you've had, your lifestyle, your diet, etc. That may help others provide you with more meaningful feedback.

[mrsD]

Pregnancy requires lots of essential fatty acids.

Since fish can be contaminated and limited for pregnant women, flax oil remains a good substitute. Women convert this to long chains well, for the fetus to develop the nervous system.

Some prenatals now have DHA in them as well. You can buy algae grown EFAs now too, to boost your levels and help your baby. There is an OTC form called Expecta.

http://www.amazon.com/s/?ie=UTF8&key...l_5lmf5pkuob_b

Boosting EFAs now will help PN too. Marlene's advice about B12 is good as well. Many babies are born to mothers low in B12 and suffer as a result.

Make sure you have adequate folate. Good food sources, and vitamins.

People with the MTHFR mutation, need the methylated forms of B12 and folate. Most commercial products contain, synthetic forms and if you are are one of the MTHFR errors, you will not be making much progress yourself or for your baby.

DNA tests for this are on the net and doctors should be doing it IMO today, with what we know about this serious flaw in some people's genetics. It can be easily and inexpensively fixed if present. Both products are OTC today. (back a few years, this was not available, but now there is no excuse to fix it if present).

[sara1011]

Originally Posted by mrsD

Pregnancy requires lots of essential fatty acids.

Since fish can be contaminated and limited for pregnant women, flax oil remains a good substitute. Women convert this to long chains well, for the fetus to develop the nervous system.

Some prenatals now have DHA in them as well. You can buy algae grown EFAs now too, to boost your levels and help your baby. There is an OTC form called Expecta.


Boosting EFAs now will help PN too. Marlene's advice about B12 is good as well. Many babies are born to mothers low in B12 and suffer as a result.

Make sure you have adequate folate. Good food sources, and vitamins.

People with the MTHFR mutation, need the methylated forms of B12 and folate. Most commercial products contain, synthetic forms and if you are are one of the MTHFR errors, you will not be making much progress yourself or for your baby.

DNA tests for this are on the net and doctors should be doing it IMO today, with what we know about this serious flaw in some people's genetics. It can be easily and inexpensively fixed if present. Both products are OTC today. (back a few years, this was not available, but now there is no excuse to fix it if present).

Thank you for your insight, I'll def. take note. In addition to adding a hearty Omega 3 supplement to my regiment, I've been increasing my intake of flax, hemp and chia seeds as well as antioxidants. I also appear to have some pressure palsys which is why pregnancy concerns me.

I plan on further discussing the possible genetic component as well. My doctor didn't seem concerned as he didn't believe based on family history and my physical that I had any markers for it.

[mrsD]

Well, I think your "pressure palsies" suggest low methylation.

You can just ask for the test. Or get it yourself from 23andme.
It is not that expensive. But it is very costly to you and your future baby if you cannot provide the nutrients in their proper form for the baby's nervous system, and also perhaps make your own neurological symptoms worse as the baby drains off the EFAs from you. MethylB12 and methylfolate are important for forming the myelin sheath of the nerves. (along with the EFAs.)

[Marlene]

If you were on birth controls pills, these can deplete folate also. You may want to search out a good holistic nutritionist prior to getting pregnant.

[sara1011]

Am I correct that you are referring to the MMA Panel? If so, I was recently tested for that but with supplementation by value was at 54. If there is another test/panel that you're referring to, can you confirm? Sorry, I'm new at all this! So appreciative of your help.

Originally Posted by mrsD

Well, I think your "pressure palsies" suggest low methylation.

You can just ask for the test. Or get it yourself from 23andme.
It is not that expensive. But it is very costly to you and your future baby if you cannot provide the nutrients in their proper form for the baby's nervous system, and also perhaps make your own neurological symptoms worse as the baby drains off the EFAs from you. MethylB12 and methylfolate are important for forming the myelin sheath of the nerves. (along with the EFAs.)

[sara1011]

If I was/am in fact B12 deficient, can you tell me your thoughts on this supplement: Garden of Life Vitamin Code Raw B-12

Originally Posted by mrsD

Well, I think your "pressure palsies" suggest low methylation.

You can just ask for the test. Or get it yourself from 23andme.
It is not that expensive. But it is very costly to you and your future baby if you cannot provide the nutrients in their proper form for the baby's nervous system, and also perhaps make your own neurological symptoms worse as the baby drains off the EFAs from you. MethylB12 and methylfolate are important for forming the myelin sheath of the nerves. (along with the EFAs.)

[sara1011]

Originally Posted by Marlene

There are normal ranges and then ranges that are right for you when you felt better. An example would be B12 levels. Having a low normal B12 is a red flag to us here. And at 30, yours should be above 500. You may want to post what tests and results you've had, your lifestyle, your diet, etc. That may help others provide you with more meaningful feedback.

Thanks so much for taking the time to respond. My B12 was taken a few weeks after I started a B Complex and was at 400 which I've also read is low, especially with supplementation. interestingly enough, months later my B6 was taken and was high (44) which apparently can also cause/contribute to neuropathy. Since then I've taken out the B complex (due to the high B6) and am now taking a B12 raw supplement and my level as of last week was at 1100, quite the jump! I had two pregnancies within two years and breastfed and in addition, was taking acid reducing pills which I believe could all contribute to a deficiency. Any insight on recovery time from B12 once your levels start to rise?

Thanks again