Originally Posted by mrsD

Can you explain exactly what your two surgeries were in that area?

Appendectomy and exploratory laproscopy 09/2013 Resulted in chronic truncal pain (band of pain including rib area). Several cysts on spine that have been told are incidental.

Removal of intrabdominal mass for possible pain relief (thought to be pancreatic, but attached to splenic vein) 06/30/2014 Splenic vein clotted, lost 2 pints of blood. Mass was thought to be possibly scar tissue.

Did you have mesh implanted there? NO

Did you apply the mag lotion to the surgical areas? Surgical areas did not hurt except first couple of weeks after and had the least problem from them. The Epsom salts bath help for a little while after.

How many endoscopies have you had in that upper GI area?

EGD 08/2013 Normal no problem-decided appendectomy due to fecalith and belly button pain. Appendix was inflamed and distended. Surgeon had to remove scar tissue for C-section 1999 to get to appendix.

EUS 05/02/2014 resulted in esophageal tear. Was given Livequan unknowingly for prophylaxis-apparently a standard of care?
Now have gurgling/frog sounding noises after lying flat for an hour.

Had another EGD/Ph study 08/07/2014 that revealed sliding hiatal hernia where tear was. Ph study revealed little to no reflux.

Pills get stuck at GE junction and have to drink lots of water-found this out with barium swallow study 09/2014


I'd also stop the NAC... it has potential for side effects. TY

If your problems are surgically induced, I don't see how you will
be able to correct that. TY I am not sure if they are, or immune system way down.

I think 5,000mcg of B12 is enough. TY, B12 after surgery was 423, checked after numbness/tingling at night to feet 07-17-2014, Electric buzzing, tingling numb from knees down and elbows down 08-07-2014 continues with burning now, vibrations, electric charges all over body: mostly arms, legs, trucal area, and back.

Have you been tested for hepatitis? All negative Hep C? Negative

dirty endoscopes:
http://www.medscape.com/viewarticle/805801
you have to join to view this link....but it is free, and easy to do.

http://www.edwardsragatz.com/dirty-e...rbug-outbreak/

Use "dirty endoscopes" as a Google search.

Originally Posted by mrsD

So the surgery was done by endoscopy only? Down your throat only? The last surgery removal of mass was done by incision. It was not down the throat, as it was intra-abdominal (behind stomach, front of pancreas)

Not laparoscopically? Yes, regular way.

Are you calling endoscopy a "surgery"? No I am not. Was there cutting done or removal of tissue for examination (biopsy)? For intra-abdominal mass, yes there was removal and I lost two pints of blood. The mass was connected to the splenic vein.

Pancreatic pain can refer to the back. If you have some issue with the pancreas, then the pain location you have could be connected to it. Yes, some thought so that is why the open procedure surgery. The CTs (5) showed a pancreatic mass, peripancreatic mass, etc.

If you have problems due to pathology of tissue (benign)

or damage from the scopes, I doubt that most of the supplements will help. TY.

Tissue damage (trauma or surgery) responds for healing to zinc, Omega-3 fatty acids, B12, folate, magnesium, and protein. These are typically given to repair damaged tissue. TY

If your antibiotic was Levaquin, then that too could damage nerve tissue. Dr. Cohen suggests magnesium for that. TY.

There seems to be a strong connection to the timing with your procedures. Doctors will not admit to damaging you. Yes my lady.

What is your status now with the esophagus? Weird gurlgling that sounds like air coming out of throat after lying down at night. Happens even when or when not swallowing now.

Do you have trouble swallowing, pain and heart burn or whatever there? No real heart burn. Swallow much better (was in hospital for 5 days after EUS due to tear that they did not believe me from) That is a 30 minute story alone. Swallow is not the same. Food feels stuck all the time. Now have a sliding hiatal hernia at same location as tear. Did not have previous. That is another 30 minute story. Two barium swallows that are normal. I could go on and on.

When you were released from the surgeon what did he say about your outcome and results?

Originally Posted by mrsD

Well, that is alot to have to endure.

Thank you for your kind words.

We had a poster here
http://neurotalk.psychcentral.com/post1059909-4.html

Who was finally found to have a pinched celiac artery. His symptoms were more or less constant and confusing too.

You can read his posts starting from the beginning --
This is his profile:
http://neurotalk.psychcentral.com/member.php?u=62057

I am not saying this is what you have, but surgery in this area or an injury can lead to all sorts of grief. (and be difficult to diagnose). TY

From your title here in the first post of this thread...Is this pain worse only at night? Yes, it is definitely worse at rest or when I lie down. The burning is usually allodynia when I sit or lie. I also have burning in my hands, arms, legs and feet.

When you have major incisions thru the abdominal wall, there is a possibility of damage to the fascia that holds all the organs in.
This ligamentous fascia has nerve endings so perhaps Lidoderm patches might work for you? They work for my truncal pain. The incision rarely burns.

And also the magnesium lotion applied around your scar may block the pain receptors, and relax any tightness from the scarring.