Hi,
I have posted here before a few years back and now I am back because I am just so confused and frustrated and would like some insight. So I originally posted when I was 19 I am now 21. I will give a brief summary: After freshman year of college I began to experience the sensation of water running down my legs when walking in the heat. The next year I had stinging pain when I worked out (I was on the crew team) through my torso and legs. Symptoms went away for a long time only to return winter of my junior year where my clothing was painful on my skin for weeks on end almost like a sunburn that wasnt there. This pain was always on my right side thigh and side/torso mostly. I have had on and off occasional sensations (some painful, some just odd) since this all started. This past week while at work I had the water sensations in both legs all the way down for most of all of my shifts (once again heat started it because the heat in my building was turned on and I work in a kitchen). Like I said I will have long periods of time with no symptoms with sporadic episodes or just small sensations at random times. I had been seeing a neuro and had a lot of tests a few years back but I am just so confused by the pattern of the symptoms. They don't seem to be worsening or progressing from feet up like a lot of people say there seems to be no pattern to the symptoms or progression and I am so frustrated. I had a lot of tests and if any of these results would help I can tell you but the main one is a skin biopsy 2 years ago (when I was 19):

Calf ENFD = 8
Thigh ENFD = 9.71
Calf SGFND = 44.5
Thigh SGFND = 29.2 (this was the only value below 5%)

Please any suggestions or thoughts would be much appreciated I am currently working to get back into a neuro this winter.

Thank you so much!