NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Not so good news.... (https://www.neurotalk.org/peripheral-neuropathy/21326-news.html)

Alffe 06-08-2007 06:48 AM

Sending you positive thoughts for a good dx and return to good health.
Also throwing in a hug...:hug:

nide44 06-08-2007 09:26 AM

OK..... what can I say?
Everybody else's pretty much said it.

But, Don't get carried away!!
You know how you are, and how you
are able to research things.
OK, so hard is bad. There can be other reasons
not so bad..... find 'em.

As you said, a friend has had a thyroidectomy and
seems to be living OK with it. See her. Talk to her.

Go in the direction that everything can be OK.
You'll deal with it.(and hope the tests show
that it can be dealt with, easily)

We need you, Mrs D.
We want you to be well.

Go....Go away, and enjoy your vacation.
(I'm just sorry that you'll be out of touch for so long.)

HeyJoe 06-08-2007 12:03 PM

i hope that everything works out for you and it is nothing too serious. i have something going on pulmonary wise that has to be monitored every 6 months with a cat scan and the not knowing is the worst as well as it hanging over your head the whole time. Easier said than done but make this the best summer vacation ever.

Lynn52 06-09-2007 12:04 AM

Hi Mrs. D
 
Hi Mrs. D,

I know I haven't been on this board for quite sometime but always have you in my thoughts and wish you well and will say a prayer that all works out in a positive manner. I'm doing some better but have had to deal with a few person problems as I'm sure everyone does but haven't been on the computer a lot or on this board at all except reading only mode. I do hope they find your problem and hope it is treatable and something not very serious.

Love Lynn :hug:

jakatak 06-09-2007 12:30 AM

So sad
 
Life can deal some unfortunate hands sometimes....hope the best for you.

Wing42 06-09-2007 12:49 AM

You've been a beacon of light for so many for so long. I share all the well wishes others have expressed so eloquently here. Please keep us informed.

rfinney 06-09-2007 01:02 AM

mrsd,

I am absolutely certain that you will do whatever you need to do to maintain your health at the highest possible level. Your creative use of all possible resources bodes well for whatever is going on right now. As I follow your situation, please know that I will be holding an inner thought and feeling for your well-being.

rafi

dahlek 06-09-2007 01:08 AM

Mrs D...
 
All I can say has been that all my thyroid issues have always, always been underplayed...whether it's simply hyer/hypo...the treatments: meds therapies and surgeries are pretty well established...tho more is starting to be done in more progressive aspects... Most is experimental at best.. The 'traditional' routes are fairly well explored. Key is diagnosis and treatment..should a thyroid or para thyroid go kaflooowy, well treatment is fairly standard.. The symptoms are apparently the same tho. Slow, insidious, sneaky and ultimately debilatating.... Much seems to overlap with vitamin deficiencies and PN. To a degree, a good deal is helped thru diet and exercise, BUT, certified/pedigreed/and proven treatments do exist to ease such issues..Only a modicum of patience is required to allow the effects of the subtle med subsitutes/modifers to kick in. The variations of thyroid replacement/suppression therapies are varied, wide and to some, controversial. My issue is Hypo, now, Hashi's...My endo has seen films from a decade ago [comment: yucky], Films now are: Really Yuckky!!!!. Hey articulate and graphic distinctions between the two? Thyroid and parathyroid issues are usually simple to treat. Chill about it. Just be sure you don't have to be forced to take a generic! That is one area every single doc I've ever had is truly emphatic and adamant about!
Go vacation! Send pics and give me a vacation from the 95 degree heat here..Anything pretty would put my mind there in an instant! :grouphug: just from me! - j

mrsD 06-09-2007 06:23 AM

Quote:

Originally Posted by dahlek (Post 110752)
All I can say has been that all my thyroid issues have always, always been underplayed...whether it's simply hyer/hypo...the treatments: meds therapies and surgeries are pretty well established...tho more is starting to be done in more progressive aspects... Most is experimental at best.. The 'traditional' routes are fairly well explored. Key is diagnosis and treatment..should a thyroid or para thyroid go kaflooowy, well treatment is fairly standard.. The symptoms are apparently the same tho. Slow, insidious, sneaky and ultimately debilatating.... Much seems to overlap with vitamin deficiencies and PN. To a degree, a good deal is helped thru diet and exercise, BUT, certified/pedigreed/and proven treatments do exist to ease such issues..Only a modicum of patience is required to allow the effects of the subtle med subsitutes/modifers to kick in. The variations of thyroid replacement/suppression therapies are varied, wide and to some, controversial. My issue is Hypo, now, Hashi's...My endo has seen films from a decade ago [comment: yucky], Films now are: Really Yuckky!!!!. Hey articulate and graphic distinctions between the two? Thyroid and parathyroid issues are usually simple to treat. Chill about it. Just be sure you don't have to be forced to take a generic! That is one area every single doc I've ever had is truly emphatic and adamant about!
Go vacation! Send pics and give me a vacation from the 95 degree heat here..Anything pretty would put my mind there in an instant! :grouphug: just from me! - j

Thanks everyone! This slow,insidious quality really bums me out. It took YEARS to get a diagnosis for my thyroid issues in the first place. My own internist was sure I had "something" wrong...but the endo was even resistant to testing me and when he finally relented after I told him off...was embarrassed that my gland was so abnormal on the Technicium uptake. I left him after this test, because of his attitude. The progression of this... bothers me. I never had a nodule before, just a simple goiter, that responded to levothyroxine treatment. Around here, doctors opt for surgery rather quickly, and I suspect that will be offered to me eventually. The biopsies can be confusing and not 100% predictive, so with improved surgical techniques, they just might remove my right lobe. I couldn't get the appointment for the ultrasound yesterday ...I have to wait til Monday. My doctor returns from her trip on July 2nd. So there is no time for biopsy if required, until after my vacation. I am feeling better now, after the shock of it all. I heard many stories at work...from it is a piece of cake, a horror story about removing a huge goiter, and one story of a prior employee who was known to a colleague of mine who had thyroid cancer in her 30's. All over the place, the stories were! But I was surprised to find so many. I think thyroid disease is on the upswing (even my doctor has a nodule)...makes one wonder? My old kitty, (prior to the 3 we have now) died of thyroid cancer! How's that? :yikes:

My history points to a problem...both my mother and her sister had nodules. (both died before they were explored completely).

So I am slowly getting ready for all the hooha involved. Thanks to all of you for your support! I will keep you posted, of course.

We are going to take our new laptop on vacation. There is a free hot spot near the laundromat, and we can run the computer off the car. So I can log on more easily than before at the busy library. We'll give that a try. The hookup cords for that cost $70. :yikes:

nide44 06-09-2007 09:27 AM

Mrs D
Can't you go WiFi? Too far out for a wireless to connect?
The wireless cards are fairly inexpensive.(...I think ! - My son's
came with his laptop. I think they all are offering them, now.)


All times are GMT -5. The time now is 08:00 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.