I got the written report from my 2nd nc/sep. I'm now going for more underlying issues like disease and deficieny especially with my past anorexia. I also am sending all my results to Mayo,Chicago,and U f M. Also a follow up with endocronolgist and a new gp. My neuro is concerned about my low white blood count and went back again for more blood work 2 days ago but have to go back today. Anyhow I was wondering if someone can tell me what my report of the sep/emg means. My 1st neuro explained but confused and have to wait till next week to talk to my new one again.
Nerve conduction studies were obtained following posterior tibial motor,peroneal motor and sural sensory nerve stimulation. There were prolongation of the distal latency of the right peroneal and bilateral conduction velocity slowing 22.8 meters per second right,35.9 left. Sural latencies were intact following right sided stimulation,boderline latency on left with conduction velocity slowing 35.2 meters per second. This was an abnormal study consistent with a bilateral sensory motor neuropathy. These findings should be clinically correlated.
Somatosensory evoked potential(SEP) were obtained following posterior tibial nerve stimulation at the ankles. Following stimulation of either side,well-formed and reproducible popliteal fossa,lumbar and cortical potentials were seen. There was mild prolongation of the L3 response. There was shortening of the left L3-Lp37 interpeak latency. This is an abnormal study consistent with conduction delay subserving the sensory pathway of he left lower extrmity between the popliteal fossa and lumbar cord. The finding should be clinically correlated.
I don't know about this tests but in the past I had the emg/nc,bone scans,mris so on and all showed inflammation. I have been in bed for like 4 months just now able to do small errand but in horrible pain. These results to me doesn't sound severe enough for the pain I'm in. My left inner/ankle foot/calf is the major horrible pain with some right tension though and now the neck sometimes with dizzy. I was on Cymbalta,Lyrica,elavil and now started back at neurontin but only on my 2nd day of 100 twice a day. I feel already yuck from the med increase as for a week only 100. I'm super sensitive. I still take tramadol or vicadin for pain. Thanks for any interpretation.

Since I've had more like tests than I can recall. I only get the sense from your relating of the main points. that you DO have nerve damage, it's symmetrical, and it's definitely 'normal damage' on the right, more abnormal, but still damage on the left.

These types of tests do NOT show nor can they 'report' [B]inflammation/B] they merely report a slowing or speeding of signals from the nerve to the brain...and back. That they show damage is a good sign that may ultimately point to the sorts of treatments you get. It's definitely NOT in your head...However, there's that little qualifier of "These findings should be clinically correlated." I guess that plain out means More Tests!?!

Maybe that explains the constant blood tests...something is going on-but it's not consistent? I do know that prior to my diagnosis [thru the nerve conduction studies and spinal] the only things consistent in my tests were a 'little' bit of inflammation activity in the blood work and a rapid progression of the pain and numbness ...marching from the extremeties to the trunk of my body. I was lucky in that it was, once a doctor actually looked an almost classic presentation of an auto-immune neuropathy.

As for being bedridden for so long! Ask for, possibly demand, that a home therapist help you get up and about safely at home...do exercises that safely build up your overal strength so you can go OUT safely and not get the set-backs of over-exertion. For every day out of action-you can lose approximately 3 day's worth of set-back...It takes three days to regain one day's inactivity. That means work, of a specialized nature, but one that is gentle, persistent and SLOW. I do hope this helps! - j

Daniella, forgive me, I am sure you have already explained this, but how did all of thid start? Did you have an injurey to your left foot? Is there something to explain why your left foot is the worst?

Daniella, I've just searched on your name for your posts, as I don't know your history offhand, and I wasn't able to easily find a place where you described what happened.

Would you mind summarizing your history and your lab tests again, or pointing to a link that has them.

If you've not done this, let me suggest you go to the site I've put up with the charts for all the tests done for pn, www.lizajane.org. You can download the charts to an excel spreadsheet, and then either put in your lab results on computer, or just write them in by hand. The site will allow you to upload them again to share wtih us, or you can copy and paste (though usually formatting of columns is lost when we do this.)

In terms of history, tell us your age, when things started for you, your nutritional history as well, because of the anorexia, and maybe it will be easier for us to undestand what it all means.

So far, what it seems like is you have the sensorimotor neuropathy that is most common here, sometimes caused by autoimmune illness, sometimes by toxins, or lack of foodstuffs (like B12), and sometimes we never quite find out.

The most important thing about the evoked potentials, I believe, is that they DO NOT look like Multiple Sclerosis. That's what they're gnereally done to look for. They show that signals going to the brain are not going smoothly, but according to the report, that's happening in the leg, not the brain. It looks like you might have a right peroneal neuropathy, or absence (itneresting, I have no right peroneal potentials, and I've never known there was anythign specific wrong on the right)

Anorexia can lead to hypo-pituitarism, hypothyroidism, and all sorts of nutritional issues. Where are you with that?

Hi and thank you. Ok well it started 4 months ago with what I thought was an overuse injury to the left/inner ankle/foot/calf. I went to the ortho and foot/ankle doc who did bone scans,xrays,mri which only showed inflammation. He then sent me to the neuro who did a diff mri,doppler,2 emg/nc,sep. I have had multiple blood work and went back again yesterday. The only thing showed and I was tested for things like autoamune etc but that I have low white blood which she is concern,high liver enzymes.My b12 was high actually at 1500. She forgot a few tests so I went back yesterday. Anyhow I had anorexia for 12 years and am now 28. I was hospitalised many times and was extremly ill ending up in the cardiac twice. I always bounced back.I went into my last inpatient treatment and have been out for more then a year. I'm the healthiest as I don't use the eating disorder behavior and weight wise. That doesn't take away though the 12 years I lived extrmely underweight/malnurished. Back then though even when I was 40 pound under weight and my hair was falling out I only had high liver enzymes. So now it scares me though healthy that my blood work may not be accurate.I feel so annoyed with myself about my past and why I have stayed strong in my recovery as I see how precious the body is. This week I see the endocronolgist and switch gps. I have talked to some of the past docs I have seen in my eating disorder programs and see currently a nutritionist/therapist that specialise in eating disorder. They all say that regardless when had such a severe past the body heals very slowly and also that deficiencies can show up after that didn't show up in the disease. I feel almost I have 2 dx as I said it was for 3 months in the left leg but now I have bad neck pain,sometimes right leg,and left arm pain/numb. Thank you for all your help.