advertisement
Reply
 
Thread Tools Display Modes
Old 12-18-2014, 01:56 PM #1
zkrp01 zkrp01 is offline
Member
 
Join Date: Mar 2014
Posts: 550
10 yr Member
zkrp01 zkrp01 is offline
Member
 
Join Date: Mar 2014
Posts: 550
10 yr Member
Talking New Neuro--New Diagnosis

Well, I left the country where the hoot-owls and the chickens are first cousins and went to the bright lights and big city. I brought an outline with me that I wanted to cover w/the Dr. I got to tell my whole story plus that I didn't want to do redundant testing. She examined me and did much pushing and pulling, needle sensitivity from fingers to shoulders, toes to knees, lifting legs from sitting position plus getting up w/arms crossed over chest. I heard a new word--Diabetic Amyotrophy. The symptoms match much better and the best news was that it is not progressive and that I was over the "acute phase". The treatment is still the same as before, blood glucose control and father time, physical therapy on my Iliosoas, as they were the weakest. SW Medical Center in Dallas w/ Dr. Lauren Micheals as the Neuro. Not all questions are answered as you always think of things as you are driving home. The biggest remaining question I guess is whether I have PN from the knees down and Amyotrophy from the knees up? My children urged me to go, my Dr's urged me to go. I agonised about cancelling right up to the deadline.At least the word Idiopathic is gone. She said I had a bunch of causal factors to chose from and Idiopathic should not have been used. I had resigned myself to giving up. I talked to her about supplements and she was in favor of B-12 (especially if Metformin is a maintenance drug). She was in favor of Alfa-Lipoic-Acid. Neutral on the rest of the usual cocktail w/ the exception of Zinc. She told me that Zinc could drive down the Copper in my blood and told me to stop the Zinc and give an extra vial of blood to run a Copper at my next Endo visit. I felt my age as I tried to use an I-phone map app to find the place. We overshot by about 15 miles then got the big-town experience of doing 8 mph in a 75 mph zone!!! I'm glad I went a day early to find the place and found lodging nearby and ate inhouse. Thanks for listening and I hope that at least you got a smile. Good Luck, Ken in Texas. P.S. The Dr. said not to let my Chiro adjust my neck.

Last edited by zkrp01; 12-18-2014 at 02:50 PM.
zkrp01 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
baba222 (12-18-2014), Hopeless (12-19-2014), KnowNothingJon (12-18-2014), mrsD (12-18-2014), PamelaJune (12-23-2014), Susanne C. (12-18-2014)

advertisement
Old 12-19-2014, 11:00 AM #2
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Default

Quote:
Not all questions are answered as you always think of things as you are driving home.
Loved this line. Oh, how true and how often it happens. We are still processing all the conversation in our heads and more questions come up but we are already in the car.

You can go in all prepared with all the notes and things you want to discuss but you can't be prepared for the responses you get and the new information that comes up during the visit.

Maybe we need a follow-up visit about an hour after the one we just had to handle those car ride questions.
Hopeless is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PamelaJune (12-23-2014), zkrp01 (12-19-2014)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New Neuro, New Diagnosis, New Medication Scott in Fenton Traumatic Brain Injury and Post Concussion Syndrome 6 07-20-2012 02:23 PM
New Neuro...new diagnosis TooStressed Traumatic Brain Injury and Post Concussion Syndrome 4 04-26-2012 04:26 PM
still awaiting a diagnosis but content with my new neuro :) pollyest Myasthenia Gravis 3 12-27-2009 07:34 PM
New neuro = new diagnosis.. Finally!! Jan4you Multiple Sclerosis 21 01-31-2009 09:55 PM
Where to go for a difficult neuro diagnosis in the U.S? iskimud Autoimmune Diseases 5 03-30-2008 10:35 PM


All times are GMT -5. The time now is 03:34 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.