Originally Posted by Aussie99

I was just wondering if there were other PN'ers that have non diabetic induced PN that was agrivated/flared by sugars and carbs. I know of only one other person on this board who has this. I have autoimmune PN for nearly 10 years that waxed and waned and only recently have been unable to tolerate carbs and sugars because they are causing exacerbation. I have been to a gastro, an allergist, and my GP and they all don't understand it. I have been assured by my tests that I am not pre- diabetic, and also I am in good physical shape.

I had some success on RLipoic acid and for the first 2 weeks I was on it I could eat some carbs without aggrivating my PN. As my body adjusted to it but, the magic affects wore off and carbs were aggrivating it again. I have had 2 fasting Blood glucose tests and they came back at 4.2 and 4.5. I believe you need to be above 5.6 to be considered pre-diabetic/ insulin resistant.

Anyways I was just wondering if there were any others and if so what advice did you receive from your doctor.

Originally Posted by Healthgirl

Hi Aussie
I am convinced that this has something to do with blood sugar. I happen to notice that my pain and symptoms become horrendous when my blood sugar drops. I have always had low blood sugar issues but this neuropathy thing is new for me. I am transitioning to a modified ketogenic diet to see if it helps. I found this info that might to interesting to some of you.

http://jackkruse.com/what-is-peripheral-neuropathy/

Originally Posted by Aussie99

Hi Healthgirl,
I have read Jack Ruse. It's very interesting isn't it? I have been on a Paleo diet but cheated on Xmas day and still paying for it. I guess it may take a few days to get out of my system.

Originally Posted by madisongrrl

I've been on a paleo/primal/whole foods style diet for several years and I just adjust my carbs to my activity level. I think it's a great way to eat and it's easy to stay thin on. I'm considering slightly changing my diet to a Wahls Protocol type of ketogenic diet as I want to see if it helps my situation.

Originally Posted by Aussie99

Hi Madisongirl. With your diet are you in Ketosis? I am not sure if I am in Ketosis, but my friend who studied nutrition said I was not. She said ketosis causes bad breath ands dark urine. I am not sure because I don't get much carbs at all maybe 30-50 max a day. I eat mostly nuts ,veggies ,sugar free natural peanut butter,eggs,salad, lamb & beef. I have decided to see a dietician to help me devise an eating plan.

I cheated over xmas eve, Xmas day, Boxing Day with xmas cake mostly and a few caramels.

Now I am having trouble getting to that tolerable/acceptable pain plateau again.