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Old 06-16-2007, 12:19 PM #21
daniella daniella is offline
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daniella daniella is offline
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Hi. When I first had this pain I went to a foot/ankle doc and though my emg did not show tarsel tunnel he still felt like it may be. I wore the air boot which was first given to me by the ortho when though it may be a fracture but could also help with tts. I had 2 shots of cortisone in that area which made it worse. Since none of my tests at that time showed pn and at start was so isolated I wanted to do surgery as well but then started having other symptoms and had more tests which showed pn. I too just wanted relief and even now would like to have surgery to just be fixed but forget though things seem like they can't get worse there always is if you know what I mean. Before this there is a website and I don't know if its more a sales thing as I am very skeptical of everything but called the dillion institue and its more on issues like tts. Good luck in what you decide and I understand the frustration and fear.
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Old 06-16-2007, 01:10 PM #22
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Alkymst Alkymst is offline
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Default Many thanks!!

Daniella,
Many, many thanks for your comments and I'm so sorry about your situation and frustration. I know the website well - the A. Lee Dellon Institute in Baltimore - went there ~ 2years ago for an evaluation since preliminary e-mail correspondence w/ Dellon himself suggested that I might have some entrapment contribution to my situation and that they could help.

I was seen by one of Dellon's partners who gave me a most thorough physical evaluation and concluded there was only ~20% chance that surgery would give me any benefit. He suggested some other non-surgical possibilities and told me to pursue them before I opted for surgery - I have done so since. I give this fellow credit that he didn't push surgery as the only solution. In fact, later on a very skilled physical therapist I've seen multiple times during the last 3 years told me that I had little evidence for tarsal tunnel syndrome which was subsequently confirmed unequivocally by my neurologist at UPenn. I know people have long debated the "value vs hype" of Dellon's work and I seem to remember there were posts on this site some time ago that addressed this issue.

At my neuro app't yesterday he discussed at length other issues that could contribute to my deformed toes and feet besides PN and he wants to pursue all of them before any surgery - as you said - it can always be worse and surgery is not always the answer.

Thanks again for your kind words - I hope you will find some meaningful relief yourself.

Alkymst
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