Originally Posted by MelodyL (Post 1117434)

Hi. I completely agree with you. My husband has severe Neuropathy (that in itself can make a sane person go nuts). Nothing relieves it. Oh, he's tried this and that but NOTHING works and when it hits bad, it hits bad. So there's your stress. And when there is NOTHING that works, well, what can I say. He knows he will be living a life of pain the rest of his life.

He's tried ALL the treatments and had bad reactions so now he's on nothing and copes as best he can. He goes on the computer, plays his games and gets his mind off of EVERYTHING.

Everything else is on ME and you want to talk stress???? lol

But I have boundaries up and I won't let them down. So stress rolls off of my back, but then again, I'm not dealing with the neuropathy pain he deals with every single day of his life.

So many factors are at play here. I wonder if someday, somewhere, someone will come up with SOMETHING that has a one two punch. Knock out the neuropathy and get rid of the psoriasis.

Thanks much

Melody

Originally Posted by MelodyL (Post 1117542)

Cetaphil? Well, what do I have to lose? We've tried absolutely everything else, including hemp oil, extra virgin olive oil, shea butter, cocoa butter. Saran wrap did NOTHING but we tried it.

So tomorrow I'll get some Cetaphil. How do you use it? As a wash, do you leave it on or what?

Thanks much,

Melody

Originally Posted by Rosie33 (Post 1117598)

I get the big jar because it's a cream, and thicker than the lotion. Just rub it in, it's really not oily. I hope it helps, it really can't hurt at all. I think there's also a Cetaphil soap which you could use as a wash first. I've only used the cream, and I swear by it....good luck:hug:

Originally Posted by MelodyL (Post 1117061)

Hi everyone.

Sorry it's been so long but Alan keeps me hopping believe me. As some of you may recall, it's been about 7 years or so ago when Alan's neuro put him on IVIG for what she thought he might have that was causing his peripheral neuropathy. She said 'You might have CIDP so let's try IVIG". I remember asking her "will this help with the pain?" and she said "It just might". LIES!!

Anyway he had it for maybe two years or so every month. The nurse would come to the house, he'd be asleep for the whole thing and he's wake up and we really saw no progress so after two years it was stopped.

During the time BEFORE, Alan had developed psoriasis. Various little patches here and there and clobetasol took care of it.

Well!!! after the IVIG, and it began very slowly, his psoriasis began a flare up like you can't imagine. It got so bad that the clobetasol (and other topicals) failed to do a thing.

So he tried the laser at the dermatologist. Well!!! wonder of wonders, it cleared up completely. He used a compound cream twice a day and I could not believe it was ALL gone. He looked like a different man.

His doctor (our doctor) Dr. Fred said 'it will come back and when it does it will come back WITH A VENGEANCE" The dermatologist had said the same thing but what the heck did I know. I saw him with clear skin and I thought. Wow, we have a miracle here.

Slowly but sure it came back WITH A VENGEANCE, and Alan went back for the same laser treatment. IT DID NOTHING. Even Dr. Fred shook his head and said "oh Alan, you have some case going on here". We tried Lotions, change of diet, anti inflammatory this and that. I think he took steroids for a while and while that helped a bit, NOTHING really did anything.

Recently I looked up CAUSE OF PSORIASIS and I stumbled upon the info that it can be caused by a mutation of the Card 14 gene in a person's body.

So I said 'what the heck could have triggered this gene"? Oh, Alan has psoriatic arthritis also. BINGO!!!! LIGHTBULB MOMENT.

Earlier today I googled "Can IVIG cause psoriasis to get worse"?

The answers that came up on various forums was extremely informative. It seems that in some people yes indeed it does do that.

And then I said "wait a minute", all these treatments for psoriasis and psoriatic arthritis well, they suppress the immune system. That's how they clear up the psoriasis.

So what did IVIG do? BOOST his immune system.

So in my humble opinion (very humble believe me), while IVIG can help many people, god forbid they have some gene for something because it can be a trigger. The neurologist at the time had to be brain dead to not tell us this.

Right now he looks like the creature from the black lagoon. It's THAT bad.

So we put lotion and we already knew he had a Vitamin D deficiency which has been rectified. and we have tried this and that. I even bought a product called Toe Juice off the internet because it was supposed to help exfoliate people with skin conditions. It did NOTHING.

I'm going to bring this up on the psoriasis forum (if there is one). Take care all.

comments are welcome.

Melodyu

Originally Posted by MelodyL (Post 1117862)

Oh how wonderful, you got married and came to Brooklyn. We could have gone to Dunkin Donuts and I don't know if you have a Dunkin Donuts where you live but they are FAMOUS for their coffee. I am not a human being till I have my container of Dunkin Donuts in the morning. Keeps me sane. lol

All the best in your new marriage.

Hope you are feeling good.

Melody

Originally Posted by Aussie99 (Post 1117895)

Too funny! How big is a container of coffee? You mean a cup? Lol
No I have not seen a Dunkin Donuts here, we have a chain called Crispy Cream which would be equivalent. They sell the most decadent donuts.

Originally Posted by MelodyL (Post 1118021)

Oh, I know all about Crispy Creme Donuts. They are very big here too. Rosie O'Donnell once had a show and she had them on her show. She said they were the BEST donuts she ever ate. After that show the sales of Crispy Creme Donuts went off the charts.


I don't eat donuts (not that I wouldn't like to). But I don't go near any kind of donuts, cookies, malted, milk shakes), no refined or processed stuff.


But before I die, I'm going to have a steak and a calzone because I haven't had a Romanian Tenderloin steak smothered in tomatoes, garlic and lime juice (my mother used to make them and you could DIE from the aroma of them cooking on a grill).


As for the Calzone. Any pizza parlor makes them.


Very fattening. But before I leave this mortal coil, I'm getting a Calzone. I mean, we have to LIVE once in a while right?


rofl.


Are you hungry yet????

lol. Sorry to go off topic.

But we do need to laugh sometime.

I shall update if Alan's psoriasis EVER gets better. Just took a look at it. Now it's turning white. It does that. Then it flakes off.

Haven't been able to buy Cetaphil yet because of the weather and my knees.

Take care, Melody