Hi razzle51 - after my first reply to you I did further reading on the PN threads and you may already have found this one: "Anyone with Anti-MAG Neuropathy?" It's been running for a few years but has some discussion about burning feet in relation to this unusual neuropathy. You may find some useful info - sorry not sure how to put the direct link in here.
Thanks Stacy2012 for the info on erythromelalgia. I hadn't heard of that so looked it up. I don't have any of the redness typically associated with EM but I do have persistent numbness in the toe & ball area of both feet and in my left hand - slowly increasing. You're right about the confusing diagnosis with PN etc. - it's important to get as accurate assessment as possible. It took more than 10 years of misdiagnosis and treatment before I was given a definite diagnosis for Addison's Disease during a near fatal crisis. Will ask the neurologist about EM (when I finally get an appt. that is).
In regard to soaking skin in water - mine is so dry/hard that it probably does it some good. I usually only leave it in for 10-15 minutes at a time for quick relief. I also use an aqueous cream fortified with Vit E and Emu oil, twice daily as a moisturising/soothing balm.
To zkrp01 and Rosie33 thanks for the suggestions - will try some of those. I have no problem with the ice block re cold restricting circulation - having it wrapped in a couple of layers of toweling reduces the chill impact - discussed it with podiatrist who said it shouldn't be a problem. Unfortunately a fan would only add to the tinnitus and insomnia.
Good luck to all in the quest for relief. Hearing others solutions is a great motivator to try something new.

thanks for the responses , dr did diag me with Neuropathy .... not perifical kind ... gave me keppra and lorazapam and benedryl woring quite well ..

So we're your feet hot to the touch? How they discribed PN, they said a sensation of hot, but I realized later that this is real hot!
I just did a experiment with my Exergen infrared thermometer, my feet are real cold right now, the Ambian temp in the room is about 76 deg. The soles of feet measured 69 degrees, my palms are 84 degrees, and I am running a temperature 99.5 deg. My feet will heat up and get painful, then cool off and be cold to the touch.
My Rheumy thinks it is the micro capilaries misfiring, cutting off the blood flow, then when they heat up it has to much blood flow to the feet, she thinks it is a part of the neurological misfiring from SLE Lupus.
Hope they are helping you out with it!

GM Razzle51-

My PN started with numbness on soles of both feet. Over 5 yrs advanced to Severe Neuropathy, confirmed with Conductivity testing 4 times.
Take 3200 mg gabapentin and 6 mg ropiniole daily. Couldn't deal the manner in which Antidepressants interefered with my sleep. Stopped opiiates. Sedation and other common side effects became intolerable.

PN pain and periodic epidsodes of severe cramping are a daily challenge.
Consultations and testing with the best neurologists repeatedly confirmed PN and kSpinal Stenosis but without effective treatments or remediation of pain.

Moved from Detroit area where I was patient of U of M Dept of Neutology that did intervene with epidurals when crises occurred but now live in Tennessee where I'm continuing to search for a neurologist to provide ongoing PN care and pain mgmt.

I take the std supplements, Magnesium, B-12, alpha liproic acid, prescibed Vitamin-D.

Accupuncture was $70 / visit w/o noticeable benefit

My primary care is a DO that performs "Manipulation", that seems to be only non-drug therapy that's proven effective for me.
Could be worth investigating for your situation.

All the best,
Briley7333

You mentioned in your post that you take 3200mg Gabapentin as well as 6mg Ropinirol. I am taking both medications as well, albeit in smaller dosis. I am wondering if you have any side effects. In my case the ropinirole makes me very dizzy and tired, which is a nuicance during the day, but helps with sleeping at night.because it kills the neuropathy and RLS. Please let me know. wenders

I have the same sensation as you. I see many of the members here have been diagnosed with PN, and then the diagnose change at a later stage. My doctor has diagnosed me based on my description of my pain. As I told her: without my painkillers (Methadone 20 mg) it`s like standing bare foot on ice unable to move. At first it`s really cold, then the feeling change into a severe burning feeling, combined with numbness. It reach 8-9 on the pain scale quite fast.
The strange thing is that my feet is better in the morning. It takes about 2 hours to become unberable.

Morton's Epsom Salt Lotion. It helped me w/ burning, tenderness.