advertisement
Reply
 
Thread Tools Display Modes
Old 01-22-2015, 01:16 PM #1
tamimom tamimom is offline
New Member
 
Join Date: Jan 2015
Posts: 4
8 yr Member
tamimom tamimom is offline
New Member
 
Join Date: Jan 2015
Posts: 4
8 yr Member
Default Mystery

My husband had cervical fusion surgery 5 years ago. Neck pain was relieved but 2 months after surgery his toes started burning like they were dipped in hot oil. It was horrible. He was put on Lyrica and valium which alleviated some of the pain. Nerve conductivity tests were fine, diabetes test -fine, circulation test- fine, biopsy test-fine. Then, we found out that his fusion had not fused so he had to have another surgery. This was 3 years ago. Fusion worked this time. Miraculously he had no more burning toes and we attributed his prior pain to the original failed surgery. However, here we are, 3 years after a successful surgery and he is slowly starting to feel the burning in his toes again. I don't have any idea what to do or who to turn to because last time his neurologist could not figure out why it was happening and just treated the symptoms. Unfortunately ,the medication came with nasty side effects. I don't feel like the neurologist would have any answers this time either and that is frustrating. I know so many of you have dealt with these frustrations and I am hoping that you can give me some insight, suggestions, or even a glimmer of hope. We live in the Portland, OR area. Thanks again in advance.
tamimom is offline   Reply With QuoteReply With Quote

advertisement
Old 01-22-2015, 01:53 PM #2
zkrp01 zkrp01 is offline
Member
 
Join Date: Mar 2014
Posts: 550
10 yr Member
zkrp01 zkrp01 is offline
Member
 
Join Date: Mar 2014
Posts: 550
10 yr Member
Thumbs up With three years gone by

Quote:
Originally Posted by tamimom View Post
My husband had cervical fusion surgery 5 years ago. Neck pain was relieved but 2 months after surgery his toes started burning like they were dipped in hot oil. It was horrible. He was put on Lyrica and valium which alleviated some of the pain. Nerve conductivity tests were fine, diabetes test -fine, circulation test- fine, biopsy test-fine. Then, we found out that his fusion had not fused so he had to have another surgery. This was 3 years ago. Fusion worked this time. Miraculously he had no more burning toes and we attributed his prior pain to the original failed surgery. However, here we are, 3 years after a successful surgery and he is slowly starting to feel the burning in his toes again. I don't have any idea what to do or who to turn to because last time his neurologist could not figure out why it was happening and just treated the symptoms. Unfortunately ,the medication came with nasty side effects. I don't feel like the neurologist would have any answers this time either and that is frustrating. I know so many of you have dealt with these frustrations and I am hoping that you can give me some insight, suggestions, or even a glimmer of hope. We live in the Portland, OR area. Thanks again in advance.
you might think that the burning toes may not be caused by the surgery this time. Many have to eventually choose between side effects and the pain associated w/Neuropathy. I myself will retry Gabapentin if things become intolerable. I had side effects but they were not so bad that they couldn't be handled. As it is, I can tolerate the burning until bedtime and I use Mortons Epsom Salt Lotion to quell the burning enough to get to sleep. If you lurk, read, and search, you will learn about excercise and nutrician and others trials and failures. Good Luck, Ken in Texas.
zkrp01 is offline   Reply With QuoteReply With Quote
Old 01-22-2015, 02:38 PM #3
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,427
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,427
15 yr Member
Default

Welcome tamimom.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 01-29-2015, 02:12 AM #4
tamimom tamimom is offline
New Member
 
Join Date: Jan 2015
Posts: 4
8 yr Member
tamimom tamimom is offline
New Member
 
Join Date: Jan 2015
Posts: 4
8 yr Member
Default

Thank you for the welcome.
tamimom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (01-29-2015)
Old 01-29-2015, 02:14 AM #5
tamimom tamimom is offline
New Member
 
Join Date: Jan 2015
Posts: 4
8 yr Member
tamimom tamimom is offline
New Member
 
Join Date: Jan 2015
Posts: 4
8 yr Member
Default

Quote:
Originally Posted by zkrp01 View Post
you might think that the burning toes may not be caused by the surgery this time. Many have to eventually choose between side effects and the pain associated w/Neuropathy. I myself will retry Gabapentin if things become intolerable. I had side effects but they were not so bad that they couldn't be handled. As it is, I can tolerate the burning until bedtime and I use Mortons Epsom Salt Lotion to quell the burning enough to get to sleep. If you lurk, read, and search, you will learn about excercise and nutrician and others trials and failures. Good Luck, Ken in Texas.

Thanks Ken!
tamimom is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Is it a mystery? R.louise New Member Introductions 9 11-20-2014 07:48 AM
Mystery Kitty The Stumble Inn 12 10-24-2012 03:11 PM
The mystery of ALS BobbyB ALS News & Research 1 12-02-2007 10:54 AM
A Mystery Barbara H. Clark New Member Introductions 3 06-02-2007 07:20 PM
A Mystery Barbara H. Clark Parkinson's Disease 4 06-02-2007 04:56 PM


All times are GMT -5. The time now is 01:24 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.