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Old 02-14-2015, 09:15 AM #11
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en bloc en bloc is offline
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It must be more of the expense of the tests, since there is NO way to cheat on the TST. The powder they coat you in changes color based upon sweating and therefore there is no input from the patient...just a visual confirmation of the sweating (or lack of sweating). They are both very expensive pieces of equipment, but certainly these are available in the UK somewhere. It would be good in your case to document where ever you can, since many of your tests are negative. BTW, the skin biopsy also checks for autonomic fiber damage, so yet another good reason to have this done.

I do agree that you would likely benefit from a GI scope to rule out or confirm hiatal hernia, and/or any other obvious problem. Then if negative or what they find doesn't fit for the symptoms you are experiencing, then the empty test can be considered. But the hiatal hernia would certainly explain the upper gnawing discomfort you have.

So easy for the doctors to stick you with a general 'indigestion' label instead of looking forward. I would also agree that if this is an on-going problem, that it's NOT just indigestion/dyspepsia.
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Old 02-14-2015, 09:23 AM #12
MAT52 MAT52 is offline
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Quote:
Originally Posted by en bloc View Post
It must be more of the expense of the tests, since there is NO way to cheat on the TST. The powder they coat you in changes color based upon sweating and therefore there is no input from the patient...just a visual confirmation of the sweating (or lack of sweating). They are both very expensive pieces of equipment, but certainly these are available in the UK somewhere. It would be good in your case to document where ever you can, since many of your tests are negative. BTW, the skin biopsy also checks for autonomic fiber damage, so yet another good reason to have this done.

I do agree that you would likely benefit from a GI scope to rule out or confirm hiatal hernia, and/or any other obvious problem. Then if negative or what they find doesn't fit for the symptoms you are experiencing, then the empty test can be considered. But the hiatal hernia would certainly explain the upper gnawing discomfort you have.

So easy for the doctors to stick you with a general 'indigestion' label instead of looking forward. I would also agree that if this is an on-going problem, that it's NOT just indigestion/dyspepsia.
Thanks - actually we are thinking of moving to Dundee or Glasgow soon, where I believe they are equipped to run these kind of tests and are more enlightened. The neurosciences dept i went to was very underesourced although the neurophysiologist was very good I thought and he suggested I go to Dundee for investigations into Erythomelalgia.

I'm quite worried about the tummy issues because they've gone on for so long. I have longstanding gallstones too and am thinking I'm going to see a different GP and really push. I don't buy that this is just dyspepsia at all. Mat x
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