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#11 | ||
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Member
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Have you checked out thoracic outlet syndrome, same site different forum? See if reading some of the threads ring a bell. Unfortunately it is not always easily diagnosed by MRI or electrodiagnostic testing. Worth a look.
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Idiopathic Sensorimotor Polyneuropathy Atypical Migraine Chiari 1 malformation 7 mm PLIF L5-S1 Sept. 2013 Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis. |
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#12 | ||
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New Member
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They still don't know what I have (besides TN). I went from MS to cancer (paraneoplastic syndrome) to now maybe ALS or some other motor neuron disease. I'm still hoping that it's 'only' some form of neuropathy. |
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#13 | ||
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Junior Member
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Had a good talk to doctor today
![]() He's agreed carbamazepine not for me. Going to try amitryptilene(sp?!) for pain and to help me sleep. Also antibiotic in case there is an infection going on in lypmh / glands as my neck and ear have both got some tenderness & swelling. The fact that ibuprofen helps might suggest something swollen or inflamed is causing a problem. And has ordered an MRI. Feeling hopeful that the right steps are being taken ![]() |
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#14 | ||
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New Member
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Had you been sick prior to all of this? There's something called "Post Viral Syndrome" that can cause the symptoms you're experiencing. |
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#15 | |||
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Wisest Elder Ever
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There is also some new evidence that amitriptyline may encourage peripheral nerves to regrow:
http://neurotalk.psychcentral.com/post529063-1.html
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#16 | ||
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Junior Member
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Dr said on amitriptyline that it will help me get some sleep and can also benefit nerve pain. It is deffo nerve pain I am experiencing, just that there is a possibility the cause might be to do with an infection e.g. something swollen pressing on a nerve or something. Frankly I think the antibiotics are worth a try even if that's an unlikely cause - right now I'd try just about anything! |
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