Hi northerngal, I have been checked for anemia- all clear. Everything comes back clear and this just makes it so frustrating. I feel so sick and just ill on top of the weird buzzing abd awful pain. I have tinnitus as well the past few months.
Was thinking fibromyalgia as well. My body does hurt all over.
Im seeing rheumy in a month and am going to ask to try immune suppressants and see if thst does anything. Just want to stop this so will try anything. Thanks all for the advice :-)

Hi Northern gal , yes checked for anemia. All clear for that. One week until skinbiopsy resulta -really hoping it shows something.

I was diagnosed by my rheumy as having Fibro (you can check my past posts for what led up to this). He has done blood work, sleep study (apnea is known to occur with Fibro), ultra sound and MRI showing rheumatoid and most recently Echocardiagram which apparently can show heart issues due to Rheumatoid.....well mine showed "left ventricle diastolic dysfunction"....will be going to Heart Doc soon.

I have had some of the same symptoms as yours but not all....you have to just press on because you are not a hypochondriac.....utilize this forum and valid medical and research websites....they can lead you in the direction.

chloecasey

Thankyou Chloe. I will go have a look through your posts. You seem to have had a few good tests carried out. I have to really push and persuade for further tests which i just dont understand. Im lucky enough at the moment to have med insurance with my job so its not costing them to let me have these tests. I went and paid for skin biopsy myself using limited savings just to try get to the bottom of it.
Things keep progressing and I have bluey redness in my thighs and knees now but really pale lower limbs sometimes when Im stood up. The kness go puffy and red and vey sore. Im so confused whats happening. As bad as this sounds, as well as the pain its the cosmetic affects this is all having that upset me alot. I know that doesnt matter when there is so much pain and limitation going on, but I do find that part quite difficult. My legs just look awful and my skin is so thin and blotchy and wrinkled and dry as a leather bag. Compared to about 18 months ago my legs have just transformed beyond belief and are like a 90 year olds. Got to laugh about it really. I do sometimes just laugh - when Im not continually crying like a baby over it. :eek: