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Why would PN be so much worse during the night?

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Old 02-15-2015, 01:01 PM #11
MAT52 MAT52 is offline
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Isn't that the holy grail? Mt chiropractor gave me some Biofreeze and it helped a little while my knees were on fire, but I like the Epsom Lotion better. I too have a night pill that I am in a relationship with, generic Ambien. I have been down the opiate road also the Neurontin road. Not taking then anymore. If you read here, you will notice a lot of talk about medications and side effects. Some things work for some, others have side effects that are just as bad as the relief brought. Since there is spotty effectiveness all around, many study Mitochondrial health and try to get their blood in good shape and eat foods that support nerve health and avoid anything viewed as inflamatory. I am getting better and am currently practicing walking in my house without my walker. The hard fact about nerve repair is it is so slow. Think geologic mountains to the sea slow. Some research not available yet includes knocking down the bodies own roadblocks to speedy nerve regeneration. So, years go by and if a person gets relief it is seldom attributable to any one terrific thing. If a person does all that they know to do thats all you can do. I feel your need to get the cause nailed down, it's common to us all. While you are on the hunt you can make sure you are not shooting yourself in the foot by taking care of nutrition, excersise, many have to supplement such as b-12,D-3,etc. So fight the good fight, lots of folks here willing to listen. Good Luck, Ken in Texas.
Thanks Ken from Texas - you sound like a man after my own heart! I walk the dogs daily, exercise routinely (not for a week as I've been rendered a blob by this mix of diseases) and eat like a paragon of virtue - wheat and dairy free, no refined foods and lots of seeds, berries and leafy veg and fruit! I take B12 sublinguals and AdCal D3 and Duloxetine (planning to wean off slowly when I'm back from a week away working).

I am thinking I need to be in control of my health again and not let doctors bully me into accepting the concept of idiopathic or drugs that may lead to long term problems when trying to withdraw. To me personally idiopathic sounds like idiotic and pathetic rolled into one - doctors and researchers opting out of investigating further because there isn't the time or funding - and I won't just sit back and accept it. Nor would our doctors if it was happening to them I'm sure! Mat
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Old 02-16-2015, 03:39 AM #12
Malia Malia is offline
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Sorry to jump on the band wagon here but I too feel your pain over 20yrs now and the nights are horrible I know. After I have work hard all day and distracted by my intent then to stop and my focus is pain... but... I am still shocked by the calming effect of Valerian Root. It is a God send for me...like right now as we speak...
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Old 02-16-2015, 03:42 AM #13
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Sorry to jump on the band wagon here but I too feel your pain over 20yrs now and the nights are horrible I know. After I have work hard all day and distracted by my intent then to stop and my focus is pain... but... I am still shocked by the calming effect of Valerian Root. It is a God send for me...like right now as we speak...
Oh that is really interesting to know thanks Malia. I will try some and see if it helps me too. Sorry you have had this for over 20 years. For me it's only about four years but I was never a good sleeper to begin with!
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Old 02-17-2015, 09:04 PM #14
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Oh that is really interesting to know thanks Malia. I will try some and see if it helps me too. Sorry you have had this for over 20 years. For me it's only about four years but I was never a good sleeper to begin with!


In order to allow about 6hrs. deep sleep without feeling any pain, I have been taking Ambien CR every night for the past 4 or 5 years. The Ambien without the CR would wake me up after a few hours with pain. When I started the Ambien Cr, it is more of a time release so instead of the 10mg's, the CR has 12.5 mgs and a small amount kicks in a bit later. Really has made a difference.

It is unbelievable to have this time not to feel any pain. I, myself, was never a good sleeper either; but the pain made sleep almost impossible until i started the Ambien Cr. Probably not for everyone; but I am quite thankful for the sleep I know I will get each night.


Gerry
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Old 02-18-2015, 02:32 AM #15
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Sleep is soooo important to our well being. I got brain fog with the drugs for sleep. I do not do Rx drugs because of the side effects I have experienced and prefer to go natural as possible ... At night I do a Calms Forte and a Valerian and able to sleep the whole night.
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Old 02-18-2015, 03:00 AM #16
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Sleep is soooo important to our well being. I got brain fog with the drugs for sleep. I do not do Rx drugs because of the side effects I have experienced and prefer to go natural as possible ... At night I do a Calms Forte and a Valerian and able to sleep the whole night.
I agree with you Malia. With the RA drugs I took they were intended to modify the actual disease process whereas the ones for SFN are just to mask it or make you feel better about it. They alter brain receptors etc snd that really bothers me. So I plan to slowky come off Cymbalta and Omaprezole now and gp for natural methods including magnesium creams and Valeri root. But I took a zopiclone last night because I have a big day working and I nedded to sleep properly in my hotel room. Will start weenjng of drugs and trying out natural alternatives wheh I'm home again - many thanks.
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Old 02-18-2015, 03:43 AM #17
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My experience of discuss was with the Statin drugs. I agreed to take and it dropped my Cholesterol like a rock but... I had several side effects that I went to talk to the doctor about and he just wanted to prescribe another drug to treat that system... and some PT for the muscle tightness in my leg... I did that with no relief... finally put 2 and 2 together and when I stopped the symptoms did too... I am happy to report that through diet and the holistic approach I hit all the numbers on my last blood work up Now if I could only get the feeling back in my poor feet...I'd be doing a gig Oh by the way... I am part of the Campbell clan
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Old 02-18-2015, 03:55 AM #18
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In order to allow about 6hrs. deep sleep without feeling any pain, I have been taking Ambien CR every night for the past 4 or 5 years. The Ambien without the CR would wake me up after a few hours with pain. When I started the Ambien Cr, it is more of a time release so instead of the 10mg's, the CR has 12.5 mgs and a small amount kicks in a bit later. Really has made a difference.

It is unbelievable to have this time not to feel any pain. I, myself, was never a good sleeper either; but the pain made sleep almost impossible until i started the Ambien Cr. Probably not for everyone; but I am quite thankful for the sleep I know I will get each night.


Gerry
I will have to look this drug up Gerry as it may not be available in Scotland or be under another trade name perhaps. Thanks, Mat
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Old 02-18-2015, 11:26 AM #19
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Malia i dont know what the cause of your PN is or if you have found a cause yet, but statin drugs are known to cause peripheral neuropathy. If you had muscle pain while taking them, that could be your cause right there.
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Old 02-18-2015, 11:30 AM #20
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[QUOTE=MAT52;1124733]I will have to look this drug up Gerry as it may not be available in Scotland or be under another trade name.



(There is a generic available which is Zolpidem 10mg and 12.5mg.)

The most important thing to do when taking this type of sleep med is to go to bed within 10-15 min. after taking them; especially when newly started. Some will get sleepy very quickly and that could cause unbalance. As I mentioned previously; never was a very good sleeper; years of being sleep deprived.

When the PN/spine issues became too painful to even lay on the bed at night; I gave in to the Ambien/ then later Ambien CR. I am amazed at the ability to go into well needed sleep enabling me to better face another 24/7 day of pain.

I know this is not for everyone; but for me it is a godsend.


Gerry
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