I am not angry. Sorry, didn't mean to rain on the parade. It is an interesting site. I just didn't like that statement because I am not on-board with figuring out which chemicals in foods are helpful, then isolating them and supplementing with them. It doesn't work as well as eating the whole food, because it is all the compounds in the whole food together that is helpful. But I am glad I have my supplements that help with my PN, so it's not all bad.
Ron

@Beatle..
I forgot to mention the usefulness of whey protein.
With your lifestyle, it could provide the
needed aminos. It is predigested so no
Worries there.

Better than cheese with less saturated
Fat.

Mrs D,

Now I just need a whey protein pizza that tastes as good as cheese pizza.

Really though, thank you. I know I need to be more flexible with my food intake.

What do you think of this product:

http://smile.amazon.com/Garden-Life-...f+life+calcium

I thought it might be good since the calcium is from algae.

Looks pretty good if you can afford it... serving is 4 capsules.

I wouldn't count on the probiotics though...those are typically unstable and "touchy" to get fresh.

That proprietary blend also is not much of anything... but it looks good on the label.

I have no idea if it works though, but the ingredients claimed are up to date.

You can still have pizza... for a treat. I just think using the whey product daily in your juicing would provide more aminos than pizza would.

I just purchased some whey protein and will try the raw calcium (already have that) as well.

My nerves, muscles and bones have wasted before my eyes over the past 2.5 years and like many others with PN, my blood work just came back perfect, besides low urine calcium...and then of course the bone scan confirmed the osteoporosis diagnosis.

I recall learning about diabetic-related muscle wasting, there is a term for it...it goes to a point then stops and can reverse. That is what I am hoping is happening with me (even though I am not diabetic).

Does anyone know what that is called?

Mind of their own fingers thsnk you aside, is it diabetic muscle infarction?

From my experience muscle issues are abounding and my glucose is rather well controlled. It has me perplexed, but I then consider the road to here.

I don't think I am dealing with this issue per se, though I guess it is possible. My calf muscles are in a perpetual Mr. Universe mode, it seems.

I hope you feel better, Beatle.

Jon

Thanks Jon, you too.

The word I was trying to think of was Cachexia. I don't know if it applies or not but the symptoms are certainly present along with all of the others.

Many of us here experience frustration with the medical care that we receive, myself included. I got the impression from my doctor that he feels that I have become inactive by choice when he told me I need to exercise more. I agree! But I have not been athletic most of my life to reach my mid 40s and decide to give it up and become osteoporotic. I am as physically active as I can be which is not much these days I admit but here is no choice in the matter.

Sorry for the rant. Two days ago I was on my deathbed, yesterday I was almost symptom-free and felt pretty good and today I have a lot of numbness, loss of balance and coordination. Based on that, how is one supposed to plan a life (and additional workouts)?

I just read an article by Dr. Al Sears who recommends 150 mcg of MK-7 from vitamin K2 per day for osteoporosis. He said our primal ancestors got plenty of this because they ate organ meats, but we don't so much any more. He said you could also get it from egg yolks though, (I know, you don't like eggs), milk from grass-fed cows, and Swiss cheeses like Emmenthal and Norwegian Jarlsberg. He also said some new studies just released showed that calcium does not stop osteoporosis.

Thank you Joano.

I definitely don't do organ meats (:-)) but I took Mrs. D's advice and had a whey protein shake today. It was pretty good. I do also like Swiss and Jarlsberg cheeses.

Thank you for the K2 info. I do know about calcium not reversing osteoporosis, in fact currently there is nothing known that does.

All I can do is pick myself up off the ground (err, bed), take my supplements and do weight-bearing exercises on the days that I can.

This is still a mystery. No one in my family has had any neurological diseases, also no one with osteoporosis, not even 90-year-old grandmothers.