Your mention of MVA means you are talking to me as Gregor1 was moving furniture. My wasting was progressive until it stopped. Before the accident I climbed 20 plus tank batteries a day.(Texas thing) Combined over thirty stories of stairs with driving in between every two. After accident, first symptom in three days, burning pathway from hip to knee crossing over the front of quadricep. Month later unable to walk without walker despite water and professional therapy. I had diabetes before and I feel that it really let the nerve gods reek havoc. I don't know if I will continue to get better but if I don't it won't be because of lying down. I felt such loss that anger was my best friend until I looked around with my eyes open. Now if I never progress any more I will still be thankful. Hope this helped, I take 5 or 6 supplements but can't tell you anything except my b-12 is over 900 now. Good luck, Ken in Texas.

Thanks for your explanation. Today I did an EMG test which came back normal. I don't want to sound paranoid, but I am wondering how useful this kind of examination is and what steps I should take now. I never had high hopes, but it really seems that no doc will ever be of any use. So, how many of you had good EMG reading despite your problems? Thanks in advance.

I have! The EMG is only one (100 year old) tool though and it does not measure small fibers.

I had slight sensational difference under toes bafore the accident. I was playing at glucose control. Eating what I wanted and using medications,shots to suppress A1c. Genes not suspect. The MVA triggered rapid and debilitating consequences of playing games with diabetes Dr.IMHO Good Luck, Ken in Texas.

Mine was not "clean", it showed mild neuropathy, but that was just as jarring. When I read anecdotes of how much worse the symptoms of some are I recognize I am not in the worst case group, but this is anything but mild to me.

I've been doing everything possible to mitigate progression, though this week was telling.

I have a neuropathy canal at work that knows my issues. It is interesting to learn how much some people pay attention and others don't. On a bad day the unobservant may say I look tired after a five minute chat.

Last week a friend came around the corner and stopped dead in her tracks when she saw me- "are you okay?"

Glad for the weekend, even if it is mostly to convelesce.

Jon

Thanks once again. Let me rephrase my EMG-question this way: knowing that I have good results, what can I definitely rule out? Can I positively say I don't have any kind dystrophy or genetic issue?

I really want to stress how helpful you guys are (in stark contrast with doctors)

Since your EMG was recent, you might try to get a moment to ask your Dr. the question posted above. A follow-up question over the phone shouldn't be too much to ask.

I have a contrasting picture in my mind of good EMG(motor-function) while involving muscle-wasting. Wish I could do some answers for you, Good luck, Ken in Texas

I do have a genetic neuropathy with muscle wasting and yes, it does show up as a problem on the EMG. My daughter, who is my only biological child without hereditary neuropathy symptoms, had a clean EMG. This is only anecdotal information of course, but it may be reassuring to you.
A disease with acquired progressive muscle wasting is an atrophy as opposed to a dystrophy. Confusion can result because CMT or hereditary neuropathy is under the umbrella of the Muscular Dystrophy Association.

Yes, along with around 70 other orphan diseases.

you might search Amyothrophy as it involves wasting and an acute phase. I guess I have more than one thing going on at a time as one neuro said PN and another the Amyotrophy. Good Luck, Ken in Texas.