Hi Everyone,

I am a new member here so not sure if I have posted in the correct section.

I am a 37 year old woman from Uk just have been diagnosed with sfn through skin biopsy.

My symptoms first started in Dec 12 with strange feelings in my feet, like something stuck to them. then a funny buzzing feeling, 6 months later I saw a neurologist, he done some basic blood work and mri of brain and spine, which was all clear. said it was anxiety. fast forward another month. Went to Tenerife on holiday,when there had strange water drop feelings all over my body when out in heat, even on head. went back to neurologist on return. said was anxiety! fast forward another year, symptoms carried on with funny feelings in feet, and stomach and fingers ( no pain) water drop thing stopped when returned home from holiday. went through NHS and saw neurologist who defo thought it was sfn and referred me to professor in London for skin biopsy. neuro did all bloodwork,came back normal, nerve conduction test normal, thermold threshold test normal. Saw the professor in London at xmas and results are back which shows a clear increase on skin biopsy ,so looks like my nerves are rengenerating too much as he said the regenerating marker was also increased which is in keeping with neuro inflammation or an autoimmune disease. He did also note that I had taken metronidazole in the November and December before on set of symptoms and said this could have also been the cause. Once I found out it was sfn, I was completely shocked and now have burning all over my body, the neuro said the anxiety of it all had brought it all out. it is strange as it must have been there for some time but didn't start to cause pain until I panicked. Proff said it can also be caused by voltage gated potassium channels, I have just been tested for this too along with fabry disease, auto immune anti bodies and I am also having a lip biopsy as ive been told it is in keeping with sjogens syndrome. I have also been given the genetic testing I think for volgate gated sodium channel mutations. this whole thing is driving me mad, I have 2 small children, I wish I knew what it was, still waiting for blood results.