[Mairi]

Hi all,

I'm new here but not new to PN! I've had years of on-again off-again symptoms, most recently a severe onset of pain in predominantly my right foot and now use a Canadian crutch to walk due to the weird sensations, foot drop and paralyzed small toes (the 3 smallest).

My neurologist's latest blood tests detected the presence of the neurological antibody GD1b IgM, and I have been referred to another neurologist in May. MRIs all normal, NCS show neurophysiological evidence of predominantly axonal sensory neuropathy & EGM was normal. I'm presuming the new Dr will order a lumbar puncture next as a nerve biopsy is apparently not needed.

Does anyone here have any history of this disease & course of treatment? I'm hoping it qualifies me for IVIg? I'm in Australia so it's quite strictly controlled. I would love to get back to the gym & karate after 6 years of back problems then this!

Thanks for any & all comments!

Mairi
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History:

1997 - bilateral carpal tunnel decompression after pregnancy
2011 - L4-L5 microdiscectomy
2012 - L4-L5 ALIF
2013 - L5-S1 ALIF

Currently taking daily:
6 x 665mg slow release paracetamol
100mg pregabalin
10mg escitalopram