NeuroTalk Support Groups - New here! Why do people stop their medication?

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Hi canagirl
I have merged all your separate threads into this one as it makes it much easier for others to reply to the one topic, especially as the questions are related.

It looks like you need to get a skin biopsy for small fiber neuropathy to rule that out.

When I was diagnosed with idiopathic SFN last year, my neuro prescribed a low dose of gabapentin to see if it might help with symptoms. After three months, I wasn't convinced it was helping, so I had a choice of either increasing the dosage or stopping. I opted to stop primarily because I'd rather not take any medication long-term if I don't have to.

While my symptoms have improved some, I still have a lot of discomfort with some days worse than others, but I'm just trying to cope with it. If worse comes to worse, I'll turn to cannabis which is what a lot of people here have reported helps tremendously.

Quote:

Originally Posted by canagirl (Post 1127391)

Hello,

I have read many posts about people stopping their medication even though they say it was helping them. why is that? did the pain get better? I'm in sooo much pain right now I can't imagine stopping something that helped. I am not on medication right now but the pain is unbearable and I really need to try something. I am already taking supplements but they don't seem to be helping (r-lipoic acid, "nerve fix", vitamin e, vitamin c, vitamin d) I was taking b12 but my dr said my levels were very high so to stop that.

Does the pain get better? It's been about 6 months of pain and it's only getting worse. I really need to know if it gets better for most people or only worse?

I thought small fiber neuropathy as well (b/c what else can cause all these symtpoms?!!!?) However, the neurologist doesn't feel I have this b/c her clinical testing shows no evidence. I'm trying to get the test done on my own but it's really expensive $2000US dollars. Not only that, this test isn't performed here in Canada, there are twp dr's that will perform the biopsy and send it to the US but trying to get in is impossible.

Has anyone else been diagnosed with SFN when their neurologist said "I don't think so"?

Please help a struggling newbie! SFN & Massage

Hi all,

Does massage cause extreme burning pain for anyone? I thought it was supposed to promote blood circulation and healing so I gave it a try. During the massage I felt great. However, all night and all day today I have had EXTREME burning. The last time I tried to do some light stretching this happened as well but not to this degree. What's going on?

Deep message is not for me. Talk about burning. Not certain that any kind of message, except very very light, would be okay for me. Just me.

Quote:

Originally Posted by canagirl (Post 1127460)

Yes, I am no longer able to tolerate massage and I have SFN.

Hope it gets better for you.

Quote:

Originally Posted by canagirl (Post 1127459)

Yes, mine said my symptoms were skin disturbances and alluded to me being anxiety ridden and causing my symptoms. An internist luckily FINALLY listened and did the skin biopsy, and now there is a little difference in the way I am treated.

I have progressed and now have autonomic involvement too.

Hope you can get someone to listen to you soon.

Please tell me Sfn due to trauma can get better. If so, how long?

Does sfn due to trauma get better? If so, how long? It's been about 6 minths and it's only worse ( horribly). Family thinks there is no way it could get this bad that quickly. I don't know hat to do. Please, veterans I'm in desperate need of advice on how to help myself

Nortryptiline effective? Bad side effects? Troubles getting off ?

Hello,

My dr would like to try nortryptiline. I need relief from the extreme body wide burning. I'm very nervous... Is it effective ? Anybody have bad side effects? If so, what were they? Any troubles getting off? Please respond.... Thanks so muxh