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06-14-2007, 11:09 PM
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#13 | |||
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HI All,
I truly thought I was going crazy after seeing several dr.s and having many tests. I started documenting how I hurt.....first both shoulders, then both thighs, then both hands.......it just moves around all the time. It can change places in 10 minutes time! Finally when I saw a Rheumatologist he didn't look at me like I had 5 arms! At first he thought I had Polymyalgia......but after a few tests and several weeks on steriods he realized that wasn't my problem.....and after a few more tests I had the nerve/muscle biopsy that finally showed that I have neuropathy myopathy. At least I don't feel crazy anymore.......but I'm still in pain. I'm hoping it doesn't get worse but after reading about it, it sounds like maybe I'm just in the beginning of this ride! Roxie
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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