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And so I am worried but I must also say that my problematic symptoms have intensified many times over since I had my neuro tests in mid January and I think the autonomic neuropathy has superseded the SFN now - I'm having respiratory problems, GI problems and issues with my nose, ears and jaw. So we are seriously thinking of leaving our home and heading for pastures with much better facilities for rheumatology and neurology within the year. So even if he doesn't do it properly as I'd like - I will continue to push for doctors to find causes behind all this - hopefully somewhere that the specialists know what they are doing. He is taking his instructions from the lead neuropathologist in the country and so I guess I have to trust that this includes how many biopsies to take. I might make an apt to see him tomorrow about my respiratory issues and dizziness and print off the link Lou Lou sent me with diagram. Meanwhile I'm not getting quite as much neuropathic pain as I was despite the withdrawal effects of coming off Cymbalta. So it's all very complicated but I'm grateful for all advice I can get.
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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