[jenng]

I'm sorry that you are going through this; I very much understand. Sjogren's can be hard to diagnose, and if your SSA-SSB antibodies are negative, they use the Schirmer eye test for dry eye & a positive lip biopsy that shows antibody infiltration. When this began for me 13 yrs ago, they thought it may be Sjogren's, but my bloodwork was negative. I've since found out dry eye/mouth is an autonomic nervous system symptom. Mine are only mildly dry.

I have the same doctors...either arrogant or apathetic. I have lost hope that a clear cause will surface. What I do know...I have crappy genetics as far as my lumbar/cervical spine, my vitamin D & b12 was low (low 200's for both at one time) I am heterozygous for several mthfr mutations, & I have a 7 mm Chairi 1 malformation that all my neurologists to date blow off as nothing.

Just keep swimming!