[Tunaboy]

I've been reading that some people's symptoms go into remission on treatments like IVIG for auto immune disease. But for others that are not auto immune related, it just seems like people take meds to cope with the pain, etc and the condition just takes its natural course, whether for better or worse. Does anything actually stop the progression to allow the nerves to heal? Or is coping by taking meds and supplements the only solution?

[beatle]

There is no single treatment or medication that works for everyone since there are so many different types of neuropathy. Many of us try several before we find what works best at managing our symptoms.

[Coriny]

Originally Posted by Tunaboy

I've been reading that some people's symptoms go into remission on treatments like IVIG for auto immune disease. But for others that are not auto immune related, it just seems like people take meds to cope with the pain, etc and the condition just takes its natural course, whether for better or worse. Does anything actually stop the progression to allow the nerves to heal? Or is coping by taking meds and supplements the only solution?

I have had sock and glove neuropathy since late Nov 2014. The acute phase was miserable. I have pain at night, but not always severe. I am pleased that they have not found a disease after many tests and nerve biopsies. I am hopeful that this is temporary and being proactive. I can wiggle my toes after beginner yoga and after waking. I am still a newby and hopeful!! I hate taking meds and have never had anything chronic!! I shall overcome!! Good Luck and God Speed!!

[Tunaboy]

Originally Posted by Coriny

I have had sock and glove neuropathy since late Nov 2014. The acute phase was miserable. I have pain at night, but not always severe. I am pleased that they have not found a disease after many tests and nerve biopsies. I am hopeful that this is temporary and being proactive. I can wiggle my toes after beginner yoga and after waking. I am still a newby and hopeful!! I hate taking meds and have never had anything chronic!! I shall overcome!! Good Luck and God Speed!!

I hate taking meds as well, which is why I refused the prednisone my first neuro prescribed me. So what is next for you in terms of testing?

[ger715]

Originally Posted by Tunaboy

I've been reading that some people's symptoms go into remission on treatments like IVIG for auto immune disease. But for others that are not auto immune related, it just seems like people take meds to cope with the pain, etc and the condition just takes its natural course, whether for better or worse. Does anything actually stop the progression to allow the nerves to heal? Or is coping by taking meds and supplements the only solution?

Unfortunately, I happen to be in the "people" taking meds to cope with the pain. I had injections, failed trial spinal cord stimulator; nothing helped. What really did seem to worsen the PN pain was when I had bladder surgery and was given the antibiotic Levaquin for 14 days following the surgery. The PN really took off. Nothing helps except pain meds to cope with the 24/7 pain; especially the burning ankles and feet. Balance has been affected so I am using a cane when going out.

[Coriny]

Originally Posted by Tunaboy

I hate taking meds as well, which is why I refused the prednisone my first neuro prescribed me. So what is next for you in terms of testing?

That is a very good question. I am on a quest to find an empathetic doctor that will listen to the facts. I have been tested for everything you can think of. I was very confident that my condition was not vascular, but I had to have muscle and nerve biopsies anyway. Nerve biopsy revealed neuropathy. No kidding! The EMG and nerve conduction revealed more. It is all a crap shoot. It all started with dental work. I took no antibiotics or any other drug other than hydrocodone for pain after the procedure. The dentist put a lot of shots in my mouth before pulling my teeth...all of them at one time!! Maybe an overload of lidocaine straight into the nerves in my mouth. Time will tell. I am still hopeful. I am experiencing new sensations for 3 days now. The periodic nerves jumping throughout my body have recently been feeling more like the "fleas biting and jumping" on my arms ankles and feet. I have been able to bend my toes. Could it be reversing?? Praying it is