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03-25-2015, 09:25 PM | #11 | ||
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That is fine Beatle, I put it on here because I wanted others opinions.
I will come back here with any results. I am optimistic and hopeful, but also realistic. |
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"Thanks for this!" says: | mrsD (03-27-2015) |
03-25-2015, 09:26 PM | #12 | ||
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Junior Member
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Quote:
Also, are you saying that you haven't progressed since Aug 2013? That sounds like it was put out some how. |
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03-25-2015, 09:32 PM | #13 | ||
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Vibrating and tingling went on for about a year before weakness started. weakness progressed slowly. I started using afo's for the weakness 2 years ago. Everything has stayed the same for the past few years.
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03-25-2015, 09:37 PM | #14 | ||
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sorry--I didn't read your question right the first time.
I stopped all treatment in August of 2013. I was on a 3 week IVIG regiman at that time. the only real way to know if I needed it anymore was to stop and see what happened. I had already stopped progressing prior to that. |
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03-25-2015, 09:40 PM | #15 | ||
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I think you said you never had the pain/burning right? Also, only legs, no hands/arms? |
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03-25-2015, 09:49 PM | #16 | ||
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yes, only my lower legs are affected.
Upper legs,hands, arms, and proximal are all unaffected. I have had the numbness for 3 years. That also progressed slowly. Not sure if you have numbness or are familiar with it, but it's very strange. The numbness is in my feet, stops at the ankles, yet I can feel If someone touches my feet, I can feel the pinprick and vibrating tool that the neurologists use. |
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03-25-2015, 10:32 PM | #17 | ||
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https://www.dartmouth.edu/~dons/part_2/chapter_13.html Do you have trouble feeling or does it just feel numb? |
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03-26-2015, 03:56 PM | #18 | ||
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Good article My feet FEEL numb, but I still have sensory function. If I step on something I feel it.
My worst symptom from the neuropathy is the weakness. So it's possible, what I'm feeling as numbness, is the result of weakness/muscle loss. It causes the feet to have a heavy floppy feeling to them. |
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03-26-2015, 07:59 PM | #19 | |||
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"Thanks for this!" says: | northerngal (03-26-2015) |
03-26-2015, 09:16 PM | #20 | ||
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Thanks for this.....I had forgot about this thread. The place I'm going through is the one mentioned by Baba.
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