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04-01-2015, 02:21 PM | #21 | ||
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04-01-2015, 03:03 PM | #22 | ||
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yes....I am going through Cell Surgical Network. I found it through a link Baba put here on NT. They do the procedure in many locations for different conditions.
Coming right up...next week I will let you know how it goes. Although it would be nice to feel something right away--I'm sure it will take a while to know if it did anything or not. |
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04-01-2015, 03:33 PM | #23 | ||
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are you also planning to make a blog about experince? |
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04-01-2015, 06:05 PM | #24 | ||
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I went with them because their stem cell procedure seems to be following what others are doing outside the country. I feel more comfortable getting it done in the US.
The doctor who I met with (DR. Welter) seems knowledgeable and excited about the future of stem cells. It makes sense to me that he is taking these these stem cells from my abdomen fat and injecting them directly into the damaged nerves in my calves in the hope that they will know what to do and help regenerate the axons. Note I said " in the hope" I don't know and the Dr. doesn't know what will happen. It has not been done enough for peripheral nerves( at least not that I am able to find) to really know yet how it will work. yes, I will post (good or bad) the procedure and what happens from it |
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04-01-2015, 07:53 PM | #25 | ||
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Can't wait to see your posts! Godspeed! |
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"Thanks for this!" says: |
04-03-2015, 02:23 AM | #26 | ||
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Northengal,,
I cam across this site i havent read it because i am at work now but you should check it. It looks that adult stemcells responces well with how have a autoimunne or toxic neuropathy http://www.innovationsstemcellcenter...al-neuropathy/ |
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"Thanks for this!" says: | northerngal (04-03-2015) |
04-03-2015, 06:35 AM | #27 | ||
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Thank you for that Jurgen, that was an excellent article It explains the procedure exactly as I am getting it done.
With my date getting close (Apr 8th), even though I am excited I am a little nervous too--so it was nice to read that. My neuropathy is considered to be immune related due to an unexplained antibody and because they can't find any other reason--but I don't fit the "typical" CIDP criteria (so I guess I'm halfway between immune and idiopathic) The doctor doing my procedure did tell me it may need to be repeated, as the article mentioned, and thankfully gave me a decent price for any subsequent treatments. Let's just hope these stem cells know what to do once they are injected in there. |
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"Thanks for this!" says: | ger715 (04-04-2015) |
04-03-2015, 09:32 AM | #28 | ||
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goes, they are testing laborator models for CMT1A, 1B, 2A, 2B and 1X. A long way to go as far as CMT goes. This information is for those who have a type of CMT - and there are many types of it. They are doing research all of the time.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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"Thanks for this!" says: | northerngal (04-03-2015) |
04-03-2015, 12:18 PM | #29 | ||
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I don't know a lot about CMT Kitt----are they doing stem cell trials for it?
I did try to reach Dr. Michael Shy once out of Iowa who was doing some clinical work that I wanted to participate in. After several attempts with no response from him or his team I gave up. He specializes in CMT. I just assumed I did not get a response because I did not have a CMT diagnosis. |
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04-03-2015, 01:01 PM | #30 | ||
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Northengal yes i think You need To do This a couple of Times Dr.shapiro talked about This in het Video. What mark knoefler Said in his book stemcel is that it is very hard a stemcell To survive in the human body so making engrftment very difficult thats why You need To under Go This procedure a couple of Time. Van i ask You what the cost are? |
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