All I know is that they have developed laboratory models for several types of CMT.

They have developed laboratory models for several types of CMT. Then I assume they will do trials.

I am very familiar with Dr. Michael Shy and his team. He is one of the experts when it comes to CMT.

Jurgen it is $6500.00 for the first treatment and $3000.00 for any repeat procedures.
I think it might depend on how large of an area they are treating. In my case they need to harvest enough stem cells to treat the nerves in both of my lower legs.
For example, the people getting hair restoration at that same place, pay $2500.00 since they only need to harvest enough to cover their scalp.
Fortunately there are not a lot of travel costs to have to add to it, MA is within driving distance for me.

Looks cheap to me i have read a blog a member of the tinititus form how spend 40.000 dollar

The first clinicaltrials that i discover to treat Chronic inflammatory demyelinating polyneuropathy i

https://clinicaltrials.gov/ct2/show/...opathy&rank=29

what that article is referring to is completely different than what I am doing. That is a stem cell transplant which involves depleting the immune system. I did apply for a stem cell transplant a few years ago at northwestern with Dr. Burt.
I do not need a stem cell transplant now because with the use of IVIG, Rituxin, Plasma exchange and prednisone there is no longer an attack from my immune system.
The adipose stem cell THERAPY is a lot different then what is being done in that article. Usually in transplants the stem cells are derived from bone marrow not adipose tissue.

I can see where all the uses of stem cells get confusing. There are so many trials, and new info coming up all the time regarding uses for them. I will try to explain it a little better-----but keep in mind, by no means am I an expert in this. I am just always researching possibly ways to regenerate my peripheral nerves.
The use of stem cells for cancer and for "rebooting" the immune system like in the CIDP trials involve immune suppression drugs as well. Once your own immune system is wiped out you are injected with your own(or in some cases, not your own) stem cells to start a new one.
Stem cell treatment/therapy seems to be used more for regenerative purposes. The stem cells are your own and when they are given back to you the location is based on what they are needing to regenerate. They are given back through IV for some conditions, like a stroke.
In my case, my neuropathy has not got worse in over 2 years. My Dr. feels there is no more attack on my nerves from my immune system ( due to previous treatments). what I am left with is axonal damage that is not regenerating on it's own.
This is why I want to have the stem cells injected directly into my damaged nerves. There is no damage coming from my spine, my brain or my immune system, if there was then it might make more sense to have them through IV where they get into those areas.
hope that explains it a little better without getting into a novel length post

northerngal: well, like the others, i can't wait to hear how this goes. my case of CIDP sounds pretty much like yours, numb feet and atrophied leg muscles and all. (as of two months ago, my fingers started getting involved in the numbing, tingling game. oh well.)
i got in touch with Dr Burt a while ago. his people felt i'd be a good candidate for the treatment, but i never went out for a meeting or followed up. after several years of relative calm, my condition has been getting worse recently, so i am back thinking about these things.
let me ask you this. let's say Dr. Burt had accepted you ($$$$$) and then this other therapy came along ($$). would you go with stem cell replacement right away or start with the less expensive, less invasive, less time-consuming procedure and see how that works first?

Your posts are very helpful.

Cheering you on

Wishing you all the best Northerngal. It would be incredible for you - and hopefully many others, if this treatment works