Had my EMG today. I was told my nerves/muscles are normal and healthy. How can that be??? I don't think I need a skin biopsy since I don't really have much pain, just a buzzing, asleep sensation, slight burning, muscle spasms, and muscle weakness. What is the point of the EMG anyway? I was told I don't have CIDP. Obviously not yet but the point of coming to the doc is to stop the progression. The repeated EMG tests will just monitor your progress while your condition just gets worse. It doesnt really solve anything.

I am scheduled for more bloodwork this week and a brain/cervical MRI. I just don't get how my muscles seem fine according to the EMG but I still feel weak. But wouldn't I feel pain if there was something wrong with my spine or neck? Like if I slept on it wrong which caused this to start, I for sure would have felt some pain in the morning.

On another weird but good note, I had knee reflexes today. Very strange because 4 days ago the doc hit it tons of times but couldn't get it to budge. Maybe was hitting the wrong spot.

When I had my EMG done the so-called neurologist told me that he didn't see any neuropathy. Because of that he said it was probably small fiber neuropathy. I have had blood work numerous times, a cat scan, MRI, and an EMG. I'm done with all that, and just keeping informed here on these boards. I've made many adjustments as far as nutrition with vitamins and supplements. I love that I am able to connect with so many supportive people here.:grouphug:

My PCP told me it's called idiopathic because the idiot doctors don't know how to handle it!!!

MRS. D.....I think I remember reading awhile ago that probiotics in capsule form need to be refrigerated? I get mine from a pharmacy in town which are kept refrigerated. and are quite expensive. That is why I have refrained from buying them online.

I read that they need to be refrigerated once opened. That they lose potency once it is exposed to moisture. I ordered the one from above and also garden of life ultra. I'm gonna start with 25 billion a day and gradually move up.

Does anyone know if natural anti-fungals like coconut oil will kill the good bacteria as well?

The ones I had delivered did not have a refrigerate on them.
But they were delivered very cold...and went into my frig.

I believe they now pack probiotics under nitrogen, so they go
dormant but remain alive. Some very upscale ones now online don't come refrigerated either.

http://www.swansonvitamins.com/blog/...-of-probiotics

two cents
 

[QUOTE=Tunaboy;1130974]Hey everyone!

After lurking around here for the past week, I've come to the conclusion that you need to be very proactive in finding solutions instead of just relying on the doctor's word. Had my EMG today. I was told my nerves/muscles are normal and healthy. How can that be???


I wanted to support you in a couple of things you said...being proactive is what we need to do...sadly this comes at a cost. But hopefully in the end we find some relief and a little wiser....and as for your positive results....I have CRPS and my nerves respond healthy and look normal...need a good Neuro who knows and listens....:grouphug:

These don't.


http://www.amazon.com/Jarrow-Formula.../dp/B0013OUKTS


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Well im still waiting for the MRI results. Had a brain and cervical spine done. I will see my neuro tomorrow.

After doing tons of research and trying to figure out this puzzle, i'm wondering if my condition is caused by leaky gut and/or candida overgrowth. Here is my hypothesis. After my wisdom teeth surgery, I was put on a 10 day course of amoxicillin. Simultaneously I was on 800 mg ibuprofen around the clock for 5 of those days. This wreaked havoc on my intestinal health and permeability, allowing toxins, indigested foods, etc to enter my bloodstream. Meanwhile the antibiotics killed all the good bacteria, allowing candida to take over. My immune system then attacks these intruders in my blood stream causing inflammation. The only thing is that I don't have any digestive issues. I do feel/hear some stomach churning but that's it. Regular bowels, no stomach aches, gas, etc. I've been eating as cleanly as possible. Only carbs are sweet potatoes and some fruit. Mostly meat and veggies. No gluten. Only dairy is eggs and kefir. I'm also taking about 50 billion probiotic units daily. Does this sound plausible?

If you suspect Candida.... taking thiamine or the Benfotiamine is also helpful. This helps metabolize away the excess aldehydes that the Candida dumps into your system.

After seeing the Neuro she dismissed Candida and said if I had it, then I would feel very sick. My b1 levels are good according to the blood test.