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Old 03-22-2015, 01:45 PM #1
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Originally Posted by Tunaboy View Post
I read your thread as well. Scary how life can change in an instant. Hang in there!







Thank you

Same to you!!

So how long has it been for you since the start of the symptoms to today? I'm at day 36. I've actually started a count up app on my iPhone lol.

To be honest I was getting weird zaps in the affected foot for a while now but it was so random and transient I brushed it off.
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Old 03-22-2015, 01:55 PM #2
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Same to you!!

So how long has it been for you since the start of the symptoms to today? I'm at day 36. I've actually started a count up app on my iPhone lol.

To be honest I was getting weird zaps in the affected foot for a while now but it was so random and transient I brushed it off.
It's been 11 weeks since I first noticed the numbness in my right foot. I brushed it off as well thinking I could live with a little numbness and that it would go away. It wasn't until I started feeling it in my left foot I became concerned. This past week is when I started noticing it more in my arms, back, and shoulder. Also, my legs feel weaker, kinda like jello.
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Old 03-22-2015, 03:35 PM #3
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Lightbulb

When you had the teeth removed, did they give you Nitrous Oxide first before the other anesthesia?

My son had that done, that way.

A big blast of Nitrous can precipitate PN in some people... it deranges the B12 chemisry.

This is an old study...
Quote:
Arch Surg. 1993 Dec;128(12):1391-5.
Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency.
Flippo TS1, Holder WD Jr.
Author information
Abstract

Vitamin B12 (cyanocobalamin) is an integral component of two biochemical reactions in man: the conversion of L-methylmalonyl coenzyme A into succinyl coenzyme A and the formation of methionine by methylation of homocysteine. The transmethylation reaction is essential to DNA synthesis and to the maintenance of the myelin sheath by the methylation of myelin basic protein. Active vitamin B12 contains cobalt in its reduced form (Co+). Nitrous oxide produces irreversible oxidation to the Co++ and Co forms that renders vitamin B12 inactive. Five cases (four from the literature and one new case) are presented in which patients unsuspected of having vitamin B12 deficiency developed subacute combined degeneration of the spinal cord following nitrous oxide anesthesia. Patients with vitamin B12 deficiency are exceedingly sensitive to neurologic deterioration following nitrous oxide anesthesia. If unrecognized, the neurologic deterioration becomes irreversible and may result in death.

PMID:
8250714
[PubMed - indexed for MEDLINE]
from http://www.ncbi.nlm.nih.gov/pubmed/8250714

also:
http://www.ajnr.org/content/19/5/894.full.pdf

It is also possible that the Amoxicillin disrupted your GI bacteria enough to change something for you. Do you recall any loose stools or diarrhea from it? Replacing some bacteria with a good Kefir (like Lifeway which has 12 different strains)...may help you restore yourself. Disturbances of GI bacteria are a hot topic right now and suggested for many neurological problems today in the research. Yogurt typically does not have many active cultures, so Kefir would be better. I think this is definitely worth a try.
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Old 03-22-2015, 04:15 PM #4
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Originally Posted by mrsD View Post
When you had the teeth removed, did they give you Nitrous Oxide first before the other anesthesia?

My son had that done, that way.

A big blast of Nitrous can precipitate PN in some people... it deranges the B12 chemisry.

This is an old study...

It is also possible that the Amoxicillin disrupted your GI bacteria enough to change something for you. Do you recall any loose stools or diarrhea from it? Replacing some bacteria with a good Kefir (like Lifeway which has 12 different strains)...may help you restore yourself. Disturbances of GI bacteria are a hot topic right now and suggested for many neurological problems today in the research. Yogurt typically does not have many active cultures, so Kefir would be better. I think this is definitely worth a try.
I don't think I was given NO, but I can find out. I have a feeling it was the Amoxicillin or combination of that and anesthesia that set it off. I don't recall having bowel issues afterwards. So just start eating Kefir products? I was taking the pearl probiotic months ago. Maybe I should start those up again.
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Old 03-22-2015, 04:20 PM #5
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Lightbulb

Yes, do find out...

Lifeway Kefir is very good...tastes delicious and is not expensive.
It has 12 live strains in it. It is in many stores now...even Costco.

A supplement form that is also good is this:
http://www.amazon.com/gp/product/B00...?ie=UTF8&psc=1

I found it on a review page that listed the top 10 probiotics.
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Old 03-25-2015, 07:02 AM #6
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Yes, do find out...

Lifeway Kefir is very good...tastes delicious and is not expensive.
It has 12 live strains in it. It is in many stores now...even Costco.

A supplement form that is also good is this:
http://www.amazon.com/gp/product/B00...?ie=UTF8&psc=1

I found it on a review page that listed the top 10 probiotics.
MRS. D.....I think I remember reading awhile ago that probiotics in capsule form need to be refrigerated? I get mine from a pharmacy in town which are kept refrigerated. and are quite expensive. That is why I have refrained from buying them online.
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Old 04-01-2015, 05:15 PM #7
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MRS. D.....I think I remember reading awhile ago that probiotics in capsule form need to be refrigerated? I get mine from a pharmacy in town which are kept refrigerated. and are quite expensive. That is why I have refrained from buying them online.
I read that they need to be refrigerated once opened. That they lose potency once it is exposed to moisture. I ordered the one from above and also garden of life ultra. I'm gonna start with 25 billion a day and gradually move up.

Does anyone know if natural anti-fungals like coconut oil will kill the good bacteria as well?
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Old 04-01-2015, 09:38 PM #8
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MRS. D.....I think I remember reading awhile ago that probiotics in capsule form need to be refrigerated?.
These don't.


http://www.amazon.com/Jarrow-Formula.../dp/B0013OUKTS


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Old 03-23-2015, 12:34 PM #9
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Originally Posted by Tunaboy View Post
I don't think I was given NO, but I can find out. I have a feeling it was the Amoxicillin or combination of that and anesthesia that set it off. I don't recall having bowel issues afterwards. So just start eating Kefir products? I was taking the pearl probiotic months ago. Maybe I should start those up again.
one night in bed my left side became involved and soon matched my right. I could feel the transfer of involvement and it didn't take over 20 minutes. I hpoefully thought that these feelings were a good thing at the time. If you have lurked here and read stories you know that appointments are slow and the need for answers is paramount. So while you are waiting for answers that may or may not come, Excersise to tolerance, get your sleep, and see if the foods you eat may worsen inflammation. My situation had an acute phase that involved muscle wasting and loss of balance. I do not write this to alarm you as all stories are different. My legs got weaker and after smacking the pavement about two or three times, I got me a walker. 2 yrs later I am practicing in the house walking freely. I feel that returning strength is dependent upon nerve healing rather than physical training as I have pushed it and and found that this problem has its own timetable,sllloooww. So study for Mitochondrial health and keep learning. I use a gyro bike daily to keep my knees unlocked, it really helps. I listen to classic rock and a minimum of three songs plus commercials. The only other thing that has helped (besides pain meds) is Mortons Epsom Salt Lotion for burning tender tops of feet. Good Luck, Ken in Texas.
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Old 03-23-2015, 09:24 PM #10
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please dont stay away from vaccination, because you believe they cause more harm then good. vaccines for flu, MEASLES, tdap vaccine helps prevent the spread of those diseases. As for your nerve injury, did they ever tell you why it happened?
I was just told I probably damaged my pereneal nerve, maybe slept on it wrong.

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Originally Posted by zkrp01 View Post
one night in bed my left side became involved and soon matched my right. I could feel the transfer of involvement and it didn't take over 20 minutes. I hpoefully thought that these feelings were a good thing at the time. If you have lurked here and read stories you know that appointments are slow and the need for answers is paramount. So while you are waiting for answers that may or may not come, Excersise to tolerance, get your sleep, and see if the foods you eat may worsen inflammation. My situation had an acute phase that involved muscle wasting and loss of balance. I do not write this to alarm you as all stories are different. My legs got weaker and after smacking the pavement about two or three times, I got me a walker. 2 yrs later I am practicing in the house walking freely. I feel that returning strength is dependent upon nerve healing rather than physical training as I have pushed it and and found that this problem has its own timetable,sllloooww. So study for Mitochondrial health and keep learning. I use a gyro bike daily to keep my knees unlocked, it really helps. I listen to classic rock and a minimum of three songs plus commercials. The only other thing that has helped (besides pain meds) is Mortons Epsom Salt Lotion for burning tender tops of feet. Good Luck, Ken in Texas.
Yes I try to exercise as much as possible. I was actually very active in the gym, mostly weight training. But I haven't gone since last week because I felt like lifting weights just aggravated my symptoms. Now there's no way I can do squats when I am having to expend so much energy just to walk.
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