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Next new diagnosis- Sjogrens

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Old 03-26-2015, 03:05 PM #1
xrox xrox is offline
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So with the small fiber neuropathy all over my body and autonomic dysfunction diagnosed, my last test was the lip biopsy. It came back "equivical" for sjogren's.
I'm trying to absorb this. I was so desperate to think this was something that was going to go away.
Does this mean you are a candidate for IVIG?

http://www.ncbi.nlm.nih.gov/pubmed/19168191
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Old 03-26-2015, 03:49 PM #2
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did you have a positive test for SFN via skin biopsy as well as a positive lip test?
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Old 03-26-2015, 04:01 PM #3
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did you have a positive test for SFN via skin biopsy as well as a positive lip test?
Yes. The skin biopsy was significant damage and the lip biopsy shows inflammation (lymphocytes)
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Old 03-26-2015, 04:02 PM #4
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Does this mean you are a candidate for IVIG?

http://www.ncbi.nlm.nih.gov/pubmed/19168191
Nope.
I asked my doctors and they said to try Plaquenil. My neuro said there are many risks with IVIG. I would try it anyway to have my life back
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Old 03-26-2015, 04:19 PM #5
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Nope.
I asked my doctors and they said to try Plaquenil. My neuro said there are many risks with IVIG. I would try it anyway to have my life back
That is odd since I was just reading how IVIG is one of the safest compared to other immune treatments.
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Old 03-26-2015, 05:55 PM #6
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IVIG is safe compared to some other immune treatments...because the others are suppressors and can cause severe infection, etc. But IVIG carries it's own set of other risks like blood clots, kidney damage etc.
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