Hi all,

I'm new here but not new to PN! I've had years of on-again off-again symptoms, most recently a severe onset of pain in predominantly my right foot and now use a Canadian crutch to walk due to the weird sensations, foot drop and paralyzed small toes (the 3 smallest).

My neurologist's latest blood tests detected the presence of the neurological antibody GD1b IgM, and I have been referred to another neurologist in May. MRIs all normal, NCS show neurophysiological evidence of predominantly axonal sensory neuropathy & EGM was normal. I'm presuming the new Dr will order a lumbar puncture next as a nerve biopsy is apparently not needed.

Does anyone here have any history of this disease & course of treatment? I'm hoping it qualifies me for IVIg? I'm in Australia so it's quite strictly controlled. I would love to get back to the gym & karate after 6 years of back problems then this!

Thanks for any & all comments!

Mairi
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History:

1997 - bilateral carpal tunnel decompression after pregnancy
2011 - L4-L5 microdiscectomy
2012 - L4-L5 ALIF
2013 - L5-S1 ALIF

Currently taking daily:
6 x 665mg slow release paracetamol
100mg pregabalin
10mg escitalopram

Welcome Mairi.

Found this site:

http://www.ncbi.nlm.nih.gov/pubmed/19726417

This is a good article explaining:

I have to use this format for the link, because once you go there the address does not show properly to share the link with others.

I've bolded the part you need to click on or copy paste to your address bar.

People with IgM elevations should stay hydrated, and avoid high fat meals (like Ice cream etc) which thicken the blood. Keeping the blood more fluid with dietary interventions may improve circulation in the periphery.
If you have elevated triglycerides, diet and fish oil can help reduce that too...as triglycerides make the blood thicker as well.

sounds like guillan barre antibodies.

Hi there, my husband suffers from total body CIPN. He was given IVIG in the hope of some pain relief, but it was not successful for him either time. I hope you have better luck!

I only have the IgM whereas Guillan Barré has IgG. My neuropathy is chronic rather than acute, as well.