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-   -   The pcp doesnt believe i have neuropathy, despite telling her all my symptoms? (https://www.neurotalk.org/peripheral-neuropathy/218189-pcp-doesnt-believe-neuropathy-despite-telling-symptoms.html)

echoes long ago 04-01-2015 02:32 PM

which is why i noted you were the first i came across
....its your case not anothers

anon050715 04-01-2015 02:40 PM

Quote:

Originally Posted by echoes long ago (Post 1133233)
which is why i noted you were the first i came across

....its your case not anothers


No you said that I thought my PN symptoms were caused by anxiety which I never said.

You must not pay much attention cause I've been on here for less than a month and seen multiple posts that state anxiety can make the symptoms worse.

echoes long ago 04-01-2015 03:33 PM

if you read my post correctly you would note i said you believe your pn symptoms were caused by anxiety. i never said you believe your pn was caused by anxiety. you said once your anxiety levels went down your pn symptoms have virtually vanished. Quote from 3-25-15 " So my EMG was completely normal and since my EMG and the normal test my "neuropathy" has pretty much lifted!
I hope it stays like this but it appears there is definitely a psychosomatic component to my symptoms. Worrying and focusing on it made it worse and forgetting about it makes is virtually vanish."

of course i have read of anxiety making symptoms worse but not to anywhere near the degree and quickness as has happened with you. I have never read of anyone attributing nearly the entirety of their pn symptoms to anxiety as you have.


on a side note i dont understand your hostility. you have a very abrasive personality. i wont get into it further with you here, though i could believe me.

Chemar 04-01-2015 03:57 PM

Hi
I am going to have to request that this argument end please.
If members want to discuss the pedantics further, please do so in PM. Please remember the guidelines apply to PMs as well though

It is not fair to the OP to have the thread take this turn.

thanks

baba222 04-01-2015 07:26 PM

So sorry
 
Hi there,
I agree that maybe starting all over with another pcp could be worth it, if you can.
One of my greatest disappointments personally was how I was disrepected as a neuropathy patient.
My husband received more respect as my caregiver (unable to drive and on major medication now due to the sfn).
I had to constantly appear like I was not in agonizing scary nerve pain.
Is there anyone who can also go with you to your visits?
I am so sorry that you are being treated this way.:hug:

madisongrrl 04-01-2015 08:13 PM

I'm sorry as well.
 
I was treated very poorly and disrespected by my HMO as well. And I'm a very calm, analytical, and emotionally stable person who isn't easily rattled. It can happen to anyone.

When you change PCPs, a good one will evaluate you based on what they see and believe. The won't go off another PCPs evaluation that your symptoms are due to anxiety.

glenntaj 04-02-2015 07:49 AM

And just to clarify--
 
--neuorpathy,as in "damage to nerves",is, in my view, very unlikely to be caused by anxiety; the mechanisms by which that would conceivably occur do not seem to have sufficient connection.

I don't doubt, though, that anxiety can be at the root of, or exacerbate, symptoms of parastheses, tingling, etc., that can be confused with those of neuropathy. But, of course, the same can be said for a lot of conditions that produce those kind of symptoms--calcium deficiency, peripheral artery disease, conditions of the central nervous system, hypoglycemia--in that these are not caused by peripheral nerve problems per se, but can cause symptoms that feel like such problems.

I also don't doubt that anxiety can make neuropathy, or these neuropathy like symptoms, worse, at least perceptually. What especially contributes to this, though, is the tendency of far too may laypeople and physicians to very quickly go to a "mental" explanation for such symptoms that seem to have no directly discernable cause. There are a lot of studies out there that indicate that while a certain percentage of neuropathies remain idiopathic, full investigations into cause can cut way down on that percentage, but often, due to time, knowledge limit and cost/insurance considerations, such full investigations are not undertaken.

anon050715 04-02-2015 09:24 AM

Quote:

Originally Posted by glenntaj (Post 1133359)
--neuorpathy,as in "damage to nerves",is, in my view, very unlikely to be caused by anxiety; the mechanisms by which that would conceivably occur do not seem to have sufficient connection.



I don't doubt, though, that anxiety can be at the root of, or exacerbate, symptoms of parastheses, tingling, etc., that can be confused with those of neuropathy. But, of course, the same can be said for a lot of conditions that produce those kind of symptoms--calcium deficiency, peripheral artery disease, conditions of the central nervous system, hypoglycemia--in that these are not caused by peripheral nerve problems per se, but can cause symptoms that feel like such problems.



I also don't doubt that anxiety can make neuropathy, or these neuropathy like symptoms, worse, at least perceptually. What especially contributes to this, though, is the tendency of far too may laypeople and physicians to very quickly go to a "mental" explanation for such symptoms that seem to have no directly discernable cause. There are a lot of studies out there that indicate that while a certain percentage of neuropathies remain idiopathic, full investigations into cause can cut way down on that percentage, but often, due to time, knowledge limit and cost/insurance considerations, such full investigations are not undertaken.


Yep I concur that anxiety can't "damage" the nerves but it can heighten the perception of tingling and pain.

baba222 04-02-2015 01:04 PM

Quote:

Originally Posted by Neuroproblem (Post 1132959)
do you think the specialist can refer me to a a rheaumatologist, or neuro doctor.

Usually a specialist will not refer to another.

I am so sorry that the stress/anxiety card keeps getting played.

It is a laziness on the clinician's part.

I once was able to fall asleep in five minutes and sleep for 8-9 hours straight without a hitch.

Those nights are gone and waking to nerve pain and tingling is a nightmare in itself without having supportive people to help you.

As another suggestion, you might try this website:

https://www.ratemds.com

I have found that most of the reviews are close to my experience with the physician's and other providers I have seen. There is one fantastic one that helped me that was rated the same way.

Hope you get some support soon.

janieg 04-02-2015 02:19 PM

With me, it's not just stress and anxiety that worsens my symptoms, it's excitement as well. Whether it be positive or negative stimuli, I have to continually tell myself to calm down lest I pay the price.

I feel fortunate, however, that my neurologist kept reinforcing, "Don't think you're crazy. This is really happening to you, but the problem is we just don't know why."


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