NeuroTalk Support Groups - Fasciculations anyone?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Fasciculations anyone? (https://www.neurotalk.org/peripheral-neuropathy/218732-fasciculations.html)

ive been taking slo mag and my fasiculations have greatly decreased

...in my calves like crazy. It looks like Aliens, the movie. 👽

I get them....the question is what human being doesn't get twitches from time to time lol

I thought this was part of being a living, breathing organism. All jokes aside I go through spells where they can be bothersome. I've had this for years. Like MrsD said try magnesium. I drink V8 and throttle back on coffee and it helps.

Quote:

Originally Posted by baba222 (Post 1135389)

Me too. Sometimes I dont have them once. Then other times, I have them throughout the day.

When lying, they seem to come on more often.

Same with me. I get them all over my body- calves, arms, thighs, mid back, shoulders, sides of torso, abdomen, feet. I am not sure if anyone has ever experienced this, but it was likely one of the most bizarre symptoms for me yet: a metallic clicking in my left ear. I was lying down reading before bedtime and got this very odd LOUD sound in my ear. I also have ringing in the ears, but this was crazy. I googled it and apparently it can be a twitching of the muscle in your ear. WHAT? So even my ears muscles are twitching? Blows my mind. At least there is no pain involved, at least for me. I handle the annoying twitching better than pain related symptoms. And I agree with you Baba, mine are more prominent at night, when lying down. And I think mine are worse when I am more physical during the day. And yes, for me they also come and go. One day I may not have any, or that I notice. I likely only notice them when they are more consistent.

I've had them non-stop in my lower left leg for 29 years, and now my right leg has joined the party. I also feel them in my back muscles now.

Thanks for the rec on SlowMag. Has anyone tried this apparent "generic" version of it?

http://www.amazon.com/MAGNESIUM-CHLO...851KT3BRK4YN5P

Quote:

Originally Posted by kneed2no (Post 1135336)

I have recently been diagnosed with peripheral neuropathy - sensory and motor. I am wondering if anyone else gets fasciculations? I get them on the bottom of my feet, legs and arms.

I've asked family and friends if they have "twitches" and such and everyone I've asked gets them. Honestly I've never met anyone that doesn't get them.

I don't doubt that is true. What I deal with now is a whole different animal than any sort of fasticulation in the past.

I'm sure results may vary, as is true with most things, but my forearms never kept the beat of "Tainted Love" before my neuropathy kicked it up.

I let my neuro know but when my PN symptoms started my chin started twitching something crazy. I'm an account executive and when I would be in front of a client and my chin started twitching I was wondering if they could see it lol

Quote:

Originally Posted by janieg (Post 1135441)

yes, I did use this mag64... it seems unstable in the bottle when exposed to moisture. But all mag will do this as it is hygroscopic.

If you mix it with other things in a pill dispenser, you might find it ruining other drugs/supplements. Once you open the bottle if you can add some dryness canisters (you can ask your pharmacist to save some for you), it might last longer. I didn't use every day, because I am very sensitive to the oral mag laxative action. Others here may be less sensitive. People on opiates or high dose Tramadol may favor the laxative actions. I much prefer the topical Morton's lotion + nuts and high mag containing foods. This way I don't get so upset.

Mag64 is a money saver depending on where you purchase it.
The best price I found is at Costco on special order! I used to get it for around 5 bucks a bottle there. SlowMag brand name is a good buy at WalMart, even if they order it for you especially.

Thanks for posting this - after some of the discussion over the weekend I was about to ask the same thing. My symptoms started with stiffness, fasciculations, and tingling. This progressed into cramping and possibly myotonia. (This lead the first neuro I saw to test for Muscular Dystrophy.) Then the feeling of weakness and heaviness in the legs. Most of these things started to clear up when I went on Gabapentin. Then the foot burning started.

It is interesting that quite a few others seem to have developed fairly similar symptoms to what I did. Yet, three neurologists including two neuromuscular specialists have said they can find no neurological cause for my symptoms.

I think a lot of you know just how I feel right now. Its frustrating and scary when you know something bad is going on inside of your body but the Doctors can't help you or don't even feel there's anything wrong with you. :(