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04-22-2015, 08:13 AM | #1 | ||
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But ultimately, time may be the only thing that will convince you. I'm sure you have done your research, so you know that MND is almost always relentlessly progressive. So every day, week, month that goes by without your weakness getting worse should ease your worries more and more. Do your best to stay calm. Spend time with your family and friends - this will help you keep your mind off of the things that trouble you. Remember: Stress and anxiety will make your symptoms worse - especially twitching (the two leading triggers for BFS are stress/anxiety and physical illnesses virus, etc.) |
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04-22-2015, 08:23 AM | #2 | ||
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Thank you, I am sorry you went through this but it helps to know that someone knows what this is like. I also have said that 'I could write a book'...
My neuros know my fears, and one of the 3 so far says "no to ALS" because of the pain and sensory issues. I did have pain in this arm, big time, in December...since then the pain has died down, but is still there, but the weakness and twitching got worse. So that is why I wanted to know how common twitching is with neuropathy and characteristics of the twitches people with neuropathy experience.
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***** - Jul 2013 - Benign Fasciculation Syndrome (BFS) - Mar 2015 - Spine herniations at C5/C6 and C6/C7 - Apr 2015 - L. Shoulder/Arm Neuralgic Amyotrophy/Plexus Neuritis . |
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04-22-2015, 08:39 AM | #3 | |||
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Wisest Elder Ever
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Twitching may be a reaction to SSRI drugs. If you take antidepressants or Cymbalta you may be have side effects called extrapyramidal signs from them.
You may get twitching from any stimulant, decongestants for nasal congestion, or even high caffeine intake. Stimulants for ADHD or recreational cocaine will cause twitching. Your own adrenalin levels may be elevated by fear, or being high strung and these can cause twitching. Poor potassium levels and poor magnesium levels may cause twitching. Rapid changes in calcium levels also may affect the muscles. Elevated thyroid activity and disorders of the parathyroid glands will affect the muscles as well. Low blood sugar spells. These are common in pre-diabetics. You may test out in a 2 hr glucose tolerance test as normal, but a 4 hr one will show the low spells. There are DNA tests for MND: http://www.nhs.uk/news/2011/09Septem...e-disease.aspx I have corrected the broken 2nd link, and posted the title of the article too... below. Sorry...
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Last edited by mrsD; 04-22-2015 at 11:25 AM. |
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"Thanks for this!" says: | anon050715 (04-22-2015), twitchwitch (04-23-2015) |
04-22-2015, 09:26 AM | #4 | ||
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Junior Member
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So this is why I want to know - if neuropathy itself (without those other factors) can cause twitching and how common? Like, do most cases of neuropathy cause twitching? What are the characteristics, like constant, all over, hot-spots, etc. I've read articles that yes, twitching is a symptom of PN, but I want to know from those who actually have PN, what do you say? Also, MrsD - that second link you posted does not work for me.
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***** - Jul 2013 - Benign Fasciculation Syndrome (BFS) - Mar 2015 - Spine herniations at C5/C6 and C6/C7 - Apr 2015 - L. Shoulder/Arm Neuralgic Amyotrophy/Plexus Neuritis . |
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04-29-2015, 04:48 PM | #5 | ||
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I don't know how common the twitching is for neuropathy or what it even means. I have everything on your list except for the weakness while twitching. My whole body especially my arms are weakened from what ever happened/is happening to me, but the twitching is random and migrates everywhere.
My neurologist hasn't said anything about it. He asks me if it is still happening when I see him and he just puts in in his computer. I think he is just waiting to see what happens with me. |
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04-29-2015, 11:03 PM | #6 | ||
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I was in the military when an outbreak of mono happened on base. They screened everyone & I was positive for Epstein Bar. I didn't have mono as a kid, but obviously I was a carrier. I think EB is also responsible for my positive screen for Lyme. Western blot is neg.
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Idiopathic Sensorimotor Polyneuropathy Atypical Migraine Chiari 1 malformation 7 mm PLIF L5-S1 Sept. 2013 Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis. |
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04-30-2015, 08:48 AM | #7 | ||
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04-30-2015, 08:48 PM | #8 | ||
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Thankfully I've loved sardines since I was a little boy. Sardines are packed with Omega 3. I also really like mackerel which is high in Omega 3 as well. I eat about two cans of high quality sardines a week and mackerel once a week. Love them with hot sauce!
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05-01-2015, 09:44 AM | #9 | |||
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Wisest Elder Ever
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Some people react to the nightshade veggies (peppers are part of that family.) I'd avoid it for a month and see if things get better without it. The fish are good... but the hot sauce may not be agreeing with you now.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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05-02-2015, 08:29 AM | #10 | ||
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Junior Member
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The magnesium i take is oxide and the dr said nothing. Think I should change it??
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