Reply
 
Thread Tools Display Modes
Old 04-13-2015, 04:04 PM #1
anon050715
Guest
 
Posts: n/a
anon050715
Guest
 
Posts: n/a
Default

I let my neuro know but when my PN symptoms started my chin started twitching something crazy. I'm an account executive and when I would be in front of a client and my chin started twitching I was wondering if they could see it lol
  Reply With QuoteReply With Quote
Old 04-13-2015, 04:42 PM #2
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
Default

Thanks for posting this - after some of the discussion over the weekend I was about to ask the same thing. My symptoms started with stiffness, fasciculations, and tingling. This progressed into cramping and possibly myotonia. (This lead the first neuro I saw to test for Muscular Dystrophy.) Then the feeling of weakness and heaviness in the legs. Most of these things started to clear up when I went on Gabapentin. Then the foot burning started.

It is interesting that quite a few others seem to have developed fairly similar symptoms to what I did. Yet, three neurologists including two neuromuscular specialists have said they can find no neurological cause for my symptoms.

I think a lot of you know just how I feel right now. Its frustrating and scary when you know something bad is going on inside of your body but the Doctors can't help you or don't even feel there's anything wrong with you.
Ragtop262 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
baba222 (04-13-2015), echoes long ago (04-13-2015), EmilySH (04-13-2015)
Old 04-13-2015, 04:29 PM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Quote:
Originally Posted by janieg View Post
I've had them non-stop in my lower left leg for 29 years, and now my right leg has joined the party. I also feel them in my back muscles now.

Thanks for the rec on SlowMag. Has anyone tried this apparent "generic" version of it?

http://www.amazon.com/MAGNESIUM-CHLO...851KT3BRK4YN5P
yes, I did use this mag64... it seems unstable in the bottle when exposed to moisture. But all mag will do this as it is hygroscopic.

If you mix it with other things in a pill dispenser, you might find it ruining other drugs/supplements. Once you open the bottle if you can add some dryness canisters (you can ask your pharmacist to save some for you), it might last longer. I didn't use every day, because I am very sensitive to the oral mag laxative action. Others here may be less sensitive. People on opiates or high dose Tramadol may favor the laxative actions. I much prefer the topical Morton's lotion + nuts and high mag containing foods. This way I don't get so upset.

Mag64 is a money saver depending on where you purchase it.
The best price I found is at Costco on special order! I used to get it for around 5 bucks a bottle there. SlowMag brand name is a good buy at WalMart, even if they order it for you especially.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Last edited by mrsD; 04-13-2015 at 04:46 PM.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
baba222 (04-13-2015), bluesfan (04-13-2015), janieg (04-13-2015), KnowNothingJon (04-13-2015)
Old 04-13-2015, 04:52 PM #4
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
yes, I did use this mag64... it seems unstable in the bottle when exposed to moisture. But all mag will do this as it is hygroscopic.

If you mix it with other things in a pill dispenser, you might find it ruining other drugs/supplements. Once you open the bottle if you can add some dryness canisters (you can ask your pharmacist to save some for you), it might last longer. I didn't use every day, because I am very sensitive to the oral mag laxative action. Others here may be less sensitive. People on opiates or high dose Tramadol may favor the laxative actions. I much prefer the topical Morton's lotion + nuts and high mag containing foods. This way I don't get so upset.

Mag64 is a money saver depending on where you purchase it.
The best price I found is at Costco on special order! I used to get it for around 5 bucks a bottle there. SlowMag brand name is a good buy at WalMart, even if they order it for you especially.

Mrs. D:
Just curious - do you know of any scientific studies that have documented the absorption of magnesium through the skin? I use the Morton's lotion and it sometimes does seem to reduce the pain to some extent - but there seems to be a great deal of debate regarding whether or not magnesium is actually absorbed through the skin. All of the information I've seen on this comes from those who have a vested interest, so I don't consider it trustworthy.
Ragtop262 is offline   Reply With QuoteReply With Quote
Old 04-13-2015, 05:17 PM #5
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

There is one study on epsom salts baths:

http://neurotalk.psychcentral.com/post864114-32.html

I personally think this Morton's is very absorbed... It allowed me to reduce my hypertension medications from 3 a day to one small dose of betablocker. Nothing --has done this for me. Not oral, or the old CVS epsom lotion which was discontinued.

I really think this Morton product has some "accidental" combination of lotion ingredients that support transdermal absorption. No one I have recommended this to ...has any complaints, and many are sold on it totally. It is truly a miraculous product IMO. And the price is totally LOW for what you reap from it.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 04-13-2015, 05:53 PM #6
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
There is one study on epsom salts baths:

http://neurotalk.psychcentral.com/post864114-32.html

I personally think this Morton's is very absorbed... It allowed me to reduce my hypertension medications from 3 a day to one small dose of betablocker. Nothing --has done this for me. Not oral, or the old CVS epsom lotion which was discontinued.

I really think this Morton product has some "accidental" combination of lotion ingredients that support transdermal absorption. No one I have recommended this to ...has any complaints, and many are sold on it totally. It is truly a miraculous product IMO. And the price is totally LOW for what you reap from it.

Thanks Mrs. D
Ragtop262 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (04-13-2015)
Old 04-15-2015, 11:10 AM #7
anon050715
Guest
 
Posts: n/a
anon050715
Guest
 
Posts: n/a
Default

Although I'm not advocating "stress" or "anxiety" creates PN problems, people with anxiety disorders present with many physical symptoms that are not linked to any organic disease. This is fact.

I have had anxiety issues for years and a laundry list of unexplained physical ailments. Once I addressed the underlying anxiety issue the psychosomatic issues cleared up.

I think doctors see a lot of psychosomatic based ailments so when they see someone suffering with a idiopathic ailment they jump to the psychosomatic conclusion without taking other causes into consideration.

Again not saying PN is caused by a mental process, but the mind is a part of our body and when it is out of whack it can create a lot of physical symptoms that can't be connected to any organic cause.
  Reply With QuoteReply With Quote
Old 04-15-2015, 11:57 AM #8
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
10 yr Member
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
10 yr Member
Default

Twitching was my first symptom. I was (still am) twitching all over, I have about 100 -200 twitches per minute. They never stop. After resting for a while, they slow down to maybe 75-100 twitches per minute all over my body at the same time (not just arm etc. ) literally happening in every part at the same time.
canagirl is offline   Reply With QuoteReply With Quote
Old 04-15-2015, 01:33 PM #9
Neuroproblem Neuroproblem is offline
Member
 
Join Date: Feb 2015
Posts: 355
10 yr Member
Neuroproblem Neuroproblem is offline
Member
 
Join Date: Feb 2015
Posts: 355
10 yr Member
Default

Quote:
Originally Posted by UTGrad View Post
Although I'm not advocating "stress" or "anxiety" creates PN problems, people with anxiety disorders present with many physical symptoms that are not linked to any organic disease. This is fact.

I have had anxiety issues for years and a laundry list of unexplained physical ailments. Once I addressed the underlying anxiety issue the psychosomatic issues cleared up.

I think doctors see a lot of psychosomatic based ailments so when they see someone suffering with a idiopathic ailment they jump to the psychosomatic conclusion without taking other causes into consideration.

Again not saying PN is caused by a mental process, but the mind is a part of our body and when it is out of whack it can create a lot of physical symptoms that can't be connected to any organic cause.
you said this already, but im pretty sure you cant"fake" a neuropathy, if your so-called neuropathy, is caused by stress, than you should reduce it, i think the tests you are going through is causing more stress.

My neuropathy is with loss of smell, was sudden onset, and it dint appear because of stress, it appeared on the day i took diphenhydramine. and my inability to smell normally and loss of sensation is very concerning, and could be dangerous. im pretty sure "mental" condition cant cause Neuropathy continiously for weeks or months.
People can get frustrated because, of the Doctors unwilling to believe its neuropathy, and sayings your nuts for thinking that.
-the delay in diagnosis.
-i find it disheartening that doctors see neurological symptoms and mental condition, or the cause, they are not the same. neurological disorders, are disease of nerves, or neurons, while mental condition, is a disorder , probably biochemical in parts of the brain, used for emotions, and is self-limiting.
-i know my loss of smell and sensations, with other neuropathy was caused by stress.
i HAD alot of twitching within the first few weeks of the initial neuropathy and increased in twitching. Im pretty sure people also said, due to the frustration in the doctors and the disease itself, it can be stress full.

Utagrad, if you had mental condition for years, its possible your "neuropathy" is caused by it, and by your daily runs.

now if you look at everyones post, theres came out of nowhere, or sudden onset, without anything stressful(mentally) happening.

@canagirl, i think thats the common symptom of everyone with neuropathy, sometimes my right eyelid twitchs for up to 10 minutes, and parts of my body like my arms and legs, that rarely twitch also happen as well.
i also get myclonic jerks(falling asleep, jerking movement),
Neuroproblem is offline   Reply With QuoteReply With Quote
Old 04-22-2015, 04:20 AM #10
twitchwitch twitchwitch is offline
Junior Member
 
Join Date: Apr 2015
Location: American living in Germany
Posts: 67
10 yr Member
twitchwitch twitchwitch is offline
Junior Member
 
Join Date: Apr 2015
Location: American living in Germany
Posts: 67
10 yr Member
Default Please help!

Hi everyone - I really need to ask for your support here. I am in a very bad way and have some questions about your twitching/fasciculuations.

I am having a hard time with my twitches, I keep thinking they are due to MND. I have a diagnosis of plexus neuritis, but it is going to be double checked this week by two different neuros, tomorrow and Friday. I have some questions and would like to see if I am alone. I have had random, widespread twitching for 2 years now, but these twitches in my affected arm are different.
  1. Has anyone else had this fear with their twitching - that it could be due to something even more sinister than neuropathy?
  2. Is twitching a very common symptom of neuropathy, or just somewhat common?
  3. Do you have twitching in one spot, or several spots, that are like "hot spots" - where in that particular spot, the twitching is more constant? I have this area on my forearm that keeps acting up.
  4. Are they constant, meaning non-stop, or do they break/pause, but then start back up again? Mine break/pause.
  5. Do you have weakness with the twitching? I do.
  6. If yes, is the twitching in the weak area or different areas?
  7. Does anything aggravate seem to aggravate the twitching? Mine seem to act up after lots of movement.
  8. Do you have pain in the area of twitching?
  9. Do your twitches stop when using the muscle, or do they just keep going? Mine do both.
__________________
*****
- Jul 2013 - Benign Fasciculation Syndrome (BFS)
- Mar 2015 - Spine herniations at C5/C6 and C6/C7
- Apr 2015 - L. Shoulder/Arm Neuralgic Amyotrophy/Plexus Neuritis

.
twitchwitch is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
muscle fasciculations rsprin2 Parkinson's Disease 3 03-07-2013 08:03 AM
Tremors and fasciculations Lagr Traumatic Brain Injury and Post Concussion Syndrome 6 05-06-2012 02:32 PM
LDN and fasciculations homer80 Multiple Sclerosis 4 02-05-2010 11:01 PM
Fasciculations dtyree General Health Conditions & Rare Disorders 7 06-18-2009 12:25 PM
fasciculations BobbyB ALS News & Research 0 07-20-2007 12:49 PM


All times are GMT -5. The time now is 07:52 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.