So I currently have a "working " diagonosis of SFN and the nuero said last year it could end up being autoimmune related, but having seen a rheumatologist and lots of blood tests later the Rheumy says nothing showing so nothing she can do.

Anyway I have developed dry eyes and increasingly bad joint pain in wrists, hands and feet and ankles, can SFN cause this or should I be looking for something else?

I keep hitting blank walls and not getting much help and the pain is not good at all

Does your joint pain come and go? I haven't been diagnosed yet but I do get minor joint pain but it comes and goes in different spots.

No it's there all the time, sometimes it gets worse but never goes away 😏

Are you drinking plenty of fluids? When I wasn't drinking enough fluids I had dry eyes and skin.

Did they test for Sjogren's?

Not saying you have it, but:

https://www.sjogrens.org/

Take care.

Exactly the same here.

Diagnosed with SFN with skin punch test confirming.
Joint pain a severely dry eyes. Some days I feel like I might collapse if I don't lie down.

I have noticed that when my SFN pain in my feet, legs and arms really flares up my eyes really burn. Then when things subside a little, my eyes stop burn, but are still dry.

I too have been to a rheumatologist and had dozens of blood tests too. Several things are slightly "off" but not bad enough to make a diagnosis for other autoimmune diseases. (I do have Graves) I think I am starting to have more autoimmune problems (like Sjogren's), but nobody seems to want to do anything.

I have been complaining to my eye doctor about my eyes and he says my Graves is in check, just use over the counter eye drops. They do nothing for me.

All I know is whatever it is, it keeps getting worse. Just doesn't seem to be anything anyone wants to do. I have run out of options and places to turn. I've been to several different types of doctors and always end up with no relief.

Yes, maybe someone else will chime in and point us in the right direction???

There are many causes for dry eyes. Here is a good site:

http://www.mayoclinic.org/diseases-c...s/con-20024129

Billy,

Just so you know (and your rheumatologist KNOWS this too), up to 40% of patients with Sjogren's are sero-negative...meaning their bloodwork doesn't show the antibodies. I would suggest you get another opinion from a different rheumatologist. There is another new test for Sjogren's, but not available wide-spread. It 's made by Immco and called the "Sjo Test" and it's an early Sjogren's test. It's being distro'd to eye doctors first, but some Rheumatologist are using it. Doesn't hurt to ask.

That being said, there is MANY reasons for dry eyes...number one is medications. But since you have the joint pain as well, I would follow up with another opinion on the Sjogren's possibility.

Rheumy agrees I have symptoms of sjogrens and I asked her re 40% of people being sero negative but she said she would never diagonose without a positive blood test.
I have no reason for the dry eyes not on any drugs etc that cause it.
I am in the UK so the early sjgrens test not available here either.

I was convinced it is sjogrens but at the moment I am getting no joy anywhere
Seeing my neuro on Monday so will se where I get with him.

Looked at the link - I don't tick any of those causes unless it's the illness one but can't get a diagnosis for that 😏

Ophthalmologist was great she said her treatment is same with or without diagnosis so at least I have good eye drops now on prescription.