Thank you - I will bring this up to my neuro tomorrow. I appreciate the tips, especially now so that I can discuss with my doctor.

So, the professor just did a normal neuro strength, sensitivity and reflex test. All normal. He said he does not believe I have the plexus neuritis, like the neuro yesterday said. He said the same thing, that I would have had a limp arm and definite shoulder and arm atrophy, even after just a few days after the onset of pain and lameness. He said what my husband and I said, that we don't see any atrophy in my shoulder/arm at all. So he thinks I have or had something infected/inflamed and the cortisone was not a bad idea. He said to keep taking it and tapering it off, together with the gabapentine. And keep up physio. I told him my arm feels better in general, only, I have a persistent twitch in my forearm/wrist, under by my pinky side. He said that that is the same nerve path that comes from the plexus area. He said that if your arm is feeling better then this twitching is not harmful.

So I guess the I have something that just needs time to heal, and twitching is part of the process. ??? I can't believe 3 neuros and no one can give me a real answer as to what happened to me and what is still happening.

Today though, is an exception, I have so much pain in my shoulder and going into my upper arm, I can't really move or touch it. I did fall asleep on the couch last night in a weird position, so maybe that's why. I took 300m gabapentine and it is doing nothing for this pain today. I go to physiotherapy at 1:30-2pm my time, so I hope for some relief there.

Maybe I do have Lyme? I talked to my mom last night and said, "he took blood for lyme, but I've never been bitten by a tic!" and she said "OH YES YOU HAVE!! When you were little, I had to remove a fat tick from under your arm..." - so, great! Will get the results next week.

I will talk to my primary care doctor next week about anti-viral and vitamin infusions, etc.

Although you have gotten some mixed opinions on the diagnosis (which I know is frustrating), it seems like the doctors had relatively good news for you.

Unfortunately, the more I read and hear, the more apparent it is that these neurological diseases often remain a mystery - even to the experts in the field.

Hopefully, you can now concentrate on finding and treating the cause of your arm problem - and worry less about some other larger issue. Hopefully your body will take care of itself and heal with time. Be sure to maintain a good diet and maybe some basic supplements for nerve health. That may help your body get the "upper hand" in its battle to heal.

I'm pulling for you !!!