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Old 04-18-2015, 08:14 AM #1
Susanne C. Susanne C. is offline
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Susanne C. Susanne C. is offline
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Thank you for the replies! I agree that the technician could gave been nicer, my husband believes that it being late Friday afternoon didn't help, but they gave me that appointment,
RLS is a common side effect of CMT, I have had it since I was a child, but it has settled down now. Because this was of the toe it had to be in a very specific position, no pillow possible. which put a lot of stress on short, weakened muscles, hence these were more spasms than RLS. I have no feeling below the knee so my feet could have been tap dancing on mars from my perspective.
It is a hot button issue for me anytime I feel disbelieved. I think it is time to find a psychologist.
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"Thanks for this!" says:
echoes long ago (04-18-2015), St George 2013 (04-18-2015)
Old 04-18-2015, 12:07 PM #2
zkrp01 zkrp01 is offline
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zkrp01 zkrp01 is offline
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Angry Can't they

Quote:
Originally Posted by Susanne C. View Post
Thank you for the replies! I agree that the technician could gave been nicer, my husband believes that it being late Friday afternoon didn't help, but they gave me that appointment,
RLS is a common side effect of CMT, I have had it since I was a child, but it has settled down now. Because this was of the toe it had to be in a very specific position, no pillow possible. which put a lot of stress on short, weakened muscles, hence these were more spasms than RLS. I have no feeling below the knee so my feet could have been tap dancing on mars from my perspective.
It is a hot button issue for me anytime I feel disbelieved. I think it is time to find a psychologist.
use a pressure boot or some form of immobilization? I would hunt for a radiological supervisor and discuss protocols for uncontrolable appendages. I agree w/ you husband, by Friday noon everyone has already checked their brains into get the hell outta here mode. Better luck next time, Ken in Texas.
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St George 2013 (04-18-2015), Susanne C. (04-19-2015)
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