NeuroTalk Support Groups - I'm scared... Anybody this bad? Spread everywhere

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- - I'm scared... Anybody this bad? Spread everywhere (https://www.neurotalk.org/peripheral-neuropathy/218989-im-scared-bad-spread.html)

Hey Balanchine,

I am SO happy for you that you are in a period of - hopefully permanent - Clusters remission. I have been saddled with Chronic attacks so the Topiramate is helping at the moment, although I have just had to up dosage after 60-odd days of relentless pain again. I have a short list of meds at my GP's, culminating in Lithium to work through, put together by the ONLY good Neuro I have ever seen. I saw him for TN and Neuropathic Facial Pain and had a Cluster Attack in his office. Easy dx then?!

I recently went back to see a (different) Neuro after years of avoidance. One of my hopes was for Oxygen Treatment. I got no answers to anything I needed. Never going back.

As for kratom, like most meds and natural substances it is abused. Here it is overwhelmingly sold as a "legal high" at the moment, even though there are numerous strains developed for treatments. But because there is a reported death caused solely by the toxic build-up of mitragynine and 7 hydromitragynine from heavy recreational kratom use, it is on the cards that it will become illegal - as it is in Thailand and Australia.

Of course, the medicinal benefits are swept under the carpet. Far more people have died from abuse of prescription and OTC meds. If I were young again (and not so conservative, without the underlying health problems of heart/diabetes…), I would probably have chosen something like this over mixing pain killers with dangerous amounts of alcohol and marijuana. This was my strategy when trying to cope with "simple" spine injuries and Anxiety.

Dave.

Add: While the above is caused by the attitude of the stupid re: kratom as a legal high HERE, I found a huge amount of information from the US regarding different strains for pain relief and anxiety etc.

Quote:

Originally Posted by canagirl (Post 1136552)

My husband just reminded me that I have a prescription for GABA from a neuro I saw in sept ( he wanted me to try it for my twitches). I'm going to get it filled . What about my nortriptiline? Do I stay at 40? Decrease it? By how much? I'm worried about starting at 300x3 what would be a lower starting dose?
Also, I feel like a freak for not being able to handle this mentally. I'm literally crying and yelling almost all day. U all are so calm and normal. What med is safe to take with nortriptiline and GABA that will decrease my mental status. I believe my mental state is causing new neuronal connections to be made that are increasing my pain and causing me to fall further mentally and I need to get control of it. I have an appointment for biofeedback on Thursday. Hopefully that helps, cus I saw two pschycoligists and they were useless to me. They just asked me questions about my family life and tell me to think positive wtc. Which makes sense, but I need someone to guide me thru or teach me how cus I cant. So hopefully biofeedback will do that.

Anyways, I really appreciate everyone that posts suggestions. I am taking them to my dr on Tuesday. U all deserve a medal for ur efforts

Do you have diabetes.... My experience with this dread is just to accept it is not going any where ...when I stresses it just made it worse. I have taken percocet and it does help. However it is an opiaod and very addictive and can be harmful.

I take Motrin it helps quite a bit... I also get a few ice cubes put them in plastic bags and wrap my foot in it that really helps, I also have had compound which was excellent. My feet feel better when I walk as opposed to siting. Right now I feel like I have beach sand in my feet along with burning and numbness. I just ignore it unless it's intolerable then I start with my regime. Irk my feet with be gag and another menthol and put medicated powder on them.... If none of this works illtake a Xanax or acetemenophine oxy condone. Has tobe really bad for the oxy:grouphug: