It is very discouraging to be dismissed with such severe symptoms. I was first told mine was anxiety related until I insisted that it was not (how I wish it was that simple!)

Much of the testing is to rule everything else out before being given the dreaded "incurable idiopathic peripheral neuropathy" diagnosis and sent on your way with a handful of prescriptions and well wishes.

Do you mean discharged as in the neuro doesn't want to see you for followup appointments once a year?

He doesn't want to see me again at all as he said there is nothing he can do, he has decided I have SFN and that's it.

This is what I was told as well. After about a year of testing, I was referred back to my PCP for symptom management. In my experience, seeing neuros was for testing and diagnosis, nothing further.

I have SFN and my neuro released me after 10 months. He only uses the 3 major drugs for SFN, gabapentin, Cymbalta and Lyrica. I got up to 2700 mg a day of the gaba and then had to titrate down to my current level of 1800 mgs a day. Anything over 1800 mgs and I 'hear voices/music' that is not there Cymbalta over 30 mgs was the same way and Lyrica gave me a horrible stomach ache. So he released me on the 1800 mgs of gabapentin and told me to get a pain mgmt. dr. After being told the same thing by my PCP and foot and ankle dr I am finally in pain mgmt. and have been since last October.

The only dr's I use now are PCP and pain mgmt. dr. I have no A or C fibers left in my feet via skin biopsy of ankle so there is no chance of these nerves regenerating.

Take care.

Debi from Georgia

Below is the final statement from my neurologist after he ran some tests. Although he hasn't dismissed me he didn't really have any answers.


Your cervical spine shows some mild arthritic changes (I consider this essentially normal changes that we see with aging). The brain tissue looks normal on the MRI, but you do have some sinus disease (evidence of chronic sinus issues). No signs of MS however and these things would certainly not explain your symptoms. Your labs showed an elevated B6 (AKA pyridoxine), so again I would stop any supplements or vitamins with this in them unless told to take them specifically by a physician. At this point I would have to say that we do not have a certain cause for your symptoms, but we have eliminated many of the more severe conditions that could have caused them. Your symptoms may be related to the viral illness that you had around the time they started. Virus can cause some very strange symptoms and/or with a component of anxiety. If this is the case the symptoms typically just improve over time

Wow. That is strikingly similar to my experience, including the elevated B6!

How old are you UT?

I'm 34 but in full disclosure I was taking a Centrum "Energy" multi vitamin that has 300% RDA of B6 at the time of the blood test. I immediately discontinued the supplement. I was having symptoms before I started taking the Centrum Energy multi vitamin so I don't think the symptoms are due to the elevated B6.


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Yeah, if excessive B6 was the cause, the PN symptoms would likey gradually improve after supplementing was stopped.

it could be due to your b6, and your overexercising, which can damage your skeleton, people who did "crossfit" were more likely to get injuries, this kinda shows injuries and overexercise can exercerbate each other.
@billy, did you check for endocrine disorders, Endocrine disorders also can cause PN: diabetes,thyroid issues, other autoimmune.