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Discharged by my neuro

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Old 04-22-2015, 06:12 AM #1
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Originally Posted by beatle View Post
I have been discharged by three neuros since there are no more tests, my diagnosis is confirmed and there is no cure or treatment. My PCP prescribes meds for the symptoms and well, that's about it. Now I wait and I wait for new treatments to come to market. I sure wish they would hurry.
Do you mean discharged as in the neuro doesn't want to see you for followup appointments once a year?
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Old 04-22-2015, 11:16 AM #2
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Do you mean discharged as in the neuro doesn't want to see you for followup appointments once a year?
He doesn't want to see me again at all as he said there is nothing he can do, he has decided I have SFN and that's it.
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Old 04-22-2015, 11:27 AM #3
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He doesn't want to see me again at all as he said there is nothing he can do, he has decided I have SFN and that's it.
This is what I was told as well. After about a year of testing, I was referred back to my PCP for symptom management. In my experience, seeing neuros was for testing and diagnosis, nothing further.
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Old 04-24-2015, 07:34 AM #4
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Originally Posted by Billylyne5 View Post
He doesn't want to see me again at all as he said there is nothing he can do, he has decided I have SFN and that's it.
I have SFN and my neuro released me after 10 months. He only uses the 3 major drugs for SFN, gabapentin, Cymbalta and Lyrica. I got up to 2700 mg a day of the gaba and then had to titrate down to my current level of 1800 mgs a day. Anything over 1800 mgs and I 'hear voices/music' that is not there Cymbalta over 30 mgs was the same way and Lyrica gave me a horrible stomach ache. So he released me on the 1800 mgs of gabapentin and told me to get a pain mgmt. dr. After being told the same thing by my PCP and foot and ankle dr I am finally in pain mgmt. and have been since last October.

The only dr's I use now are PCP and pain mgmt. dr. I have no A or C fibers left in my feet via skin biopsy of ankle so there is no chance of these nerves regenerating.

Take care.

Debi from Georgia
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