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-   -   Ncv cause further damage? (https://www.neurotalk.org/peripheral-neuropathy/219069-ncv-cause-damage.html)

canagirl 04-20-2015 09:26 AM

Ahh, sorry gabapentin. I don't have a computer and so I use my phone and autocorrect jumps in to much. Also hard to type on this

mrsD 04-20-2015 09:31 AM

You know, I had a terrible time with the iPhone auto functions.
You can turn them off in settings...and proof read as you go along line by line. That is what I do now when I use my phone.
Sometimes that autocorrect feature types in a nasty word... and you might miss that it would appear here....very embarrassing.

And I do think typing out gabapentin is a pain as well.
But confusion can be a big problem on a written venue like this.

anon050715 04-20-2015 09:34 AM

FYI canagirl I meant to say "good luck at your appt tomorrow" but my I phone auto correct changed "appt" to "spot" lol


Sent from my iPhone using Tapatalk

KnowNothingJon 04-20-2015 03:52 PM

UT, that gave me a chuckle.

I thought "Hmm, never heard of an appointment being called a spot"


I thought I was just getting old.

Jon

anon050715 04-20-2015 04:11 PM

Quote:

Originally Posted by KnowNothingJon (Post 1137106)
UT, that gave me a chuckle.



I thought "Hmm, never heard of an appointment being called a spot"





I thought I was just getting old.



Jon


I guess an appointment is a "spot" in someone's schedule lol

Diandra 04-20-2015 09:00 PM

Quote:

Originally Posted by canagirl (Post 1136978)
Tag in another question here.

I'm thinking of having an mrn to show where my nerves are phyßically injured. If I did this, could dr do surgical repair of many nerves? Is it too late ? My injury was 4 months ago

Hi Canagirl,
Sorry for being late in the game to your posts. Do you mind me asking what injury you had 4 months ago?

Your pain and anxiety seem to cycle around and they feed on each other. Constant pain that it out of control is so scary. I know how scared I was before I got it under control. Have you seen a pain mgmt doctor? My main pain issue is neuropathy and it is controlled by my pain mgmt doc, not a neurologist. I found the neurologist did not look at all my pain issues and I never really found a good neurologist so my primary care doc sent to a pain mgmt doc I have been seeing for 10 yrs now. Please hold onto hope and know there may be some solutions perhaps not yet explored. I also wonder if your employer offers any mental health benefits, often called EAP(Employee Assistance Plan) for critical need counseling. With your pain levels and your crying and yelling, you poor dear, really need someone to talk to frequently until you have found some solutions.

I know you had gone to the ER without much help....do you have a primary care doc who can get you to a pain mgmt doc and a therapist. There are many therapists that deal with pain issues.

Private message me if you want to talk about things on a more personal level.
I don't know where you live...maybe those in your geographic area can offer names of pain mgmt doctors.

My best, Diandra

Tunaboy 04-20-2015 09:16 PM

I'm not sure if I felt worse but I hated it either way. Unfortunately, my new neuro wants to do her own EMG when I had one a few weeks ago :mad:

St George 2013 04-20-2015 10:49 PM

Honey you have got to calm yourself down :)
 
Quote:

Originally Posted by canagirl (Post 1136993)
Ugh..!! I can't lean on my back at all it hurts so much in the needle sites. Is that normal normal? What I going to do???? Even if GABA starts helping I'm still going to be freaking out, I know it. I will constantly worry about how bad it's actually getting and am I harming myslef without realizing it.
It just seems too hard..every minute is a struggle why put myslef through this?
I know people get relief and go on living but what happens if they don't work? Or I get some releif but still not enough? Or the meds stop working? I'm only 31. If I was 60 I would be less concerned bc I wouldn't need meds to last for as many years.


You have got to calm yourself down before you see the dr tomorrow. You also need to ask for something to calm your nerves down.

This 24/7 worrying is not getting you anywhere and you are only hurting yourself more.

There are many medications and treatments. You have to go slow and let them do one thing at a time to determine what works for you.

Something will work for you...or several things. We're all trying to help you navigate this but you have to listen to what we are all telling you.

I know it's bad now....believe me I've been there and so have all these people that are trying to help you. I'm not pain free now but much better than it was 2 years ago.

There is a light at the end of the tunnel so to speak.

Debi from Georgia

EnglishDave 04-21-2015 11:07 AM

Hi Canagirl,

First a Quote from an earlier Post of yours on this Thread:

Like the pain into scalp has slowly spread sides to my era and lower jaw then radiates out from lower jaw by my ear towards my nose and mouth and not only pain and burning but squeezing too. And that's just one example. Quote

I hate to tell you this, but this sounds like your Trigeminal Nerve is being aggitated. You WILL need urgent help if this progresses.

Secondly: Typing from your phone. On long Posts, type them out into Notepad first, proof them at your leisure, then copy/paste them over into a new Post/Thread Box. It's what I do on phone and tablet, I'm so slow and prone to mistakes.

Finally, like Diandra, above, I missed your initial accident. I know it's repeating, but would you share please? She also has strong points regarding the state of your mental health with all of this. I am the strongest proponent in the fight against Depression, every chronic, severe pain sufferer is at risk - no matter how strong the home support structure.

Dave.

canagirl 04-21-2015 11:52 AM

Quote:

Originally Posted by EnglishDave (Post 1137252)
Hi Canagirl,

First a Quote from an earlier Post of yours on this Thread:

Like the pain into scalp has slowly spread sides to my era and lower jaw then radiates out from lower jaw by my ear towards my nose and mouth and not only pain and burning but squeezing too. And that's just one example. Quote

I hate to tell you this, but this sounds like your Trigeminal Nerve is being aggitated. You WILL need urgent help if this progresses.


Finally, like Diandra, above, I missed your initial accident. I know it's repeating, but would you share please? She also has strong points regarding the state of your mental health with all of this. I am the strongest proponent in the fight against Depression, every chronic, severe pain sufferer is at risk - no matter how strong the home support structure.

Dave.

I hope it's not TN! Is there anything you can do about TN? You say I will need urgent help if this progresses...what type of help?

The injury was from acupuncture (I know it's hard to believe...but believe me I know it to be 100% true. I still have the puncture marks on my scalp, neck and back) I have major pain in those areas and the pain radiates outwards from there in lines. then of course all of my skin stings.

I admit wholeheartedly that I am depressed. I don't know how to get out. I start biofeedback/neurotherapy this week. I have seen phsycologists but don't find them helpful at all. I am on the nortriptyline which is an anti-dep. I don't know what else to do. I KNOW I need to calm my mental state desperately, I don't know how. I"ve never experienced anything like this mental state in my life, not even a little. I didn't realize what a charmed life I lead. I was always that person that didn't understand anxiety and depression... I just thought "well, suck it up and move on. What do you mean you can't get out of bed? What's stopping you? Just get up!" Wow, has that ever changed.


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